Well, we did it. We pulled the drain out today. I was so scared - still am truthfully, but I guess we had to try it sometime. The doctor assured me that if the fluid starts building back up, we can just put the drain back in and leave it in for months (or however long it takes to quit draining fluid). If that happens, he said we can go home for a couple of weeks over Thanksgiving and then again at Christmas.
So we are going to see how this goes. We should know by tomorrow morning if it's going to build back up, but so far, so good. If all goes well, we can go home next week. I so hope so!
As for removing the plate, the doc told me today that we will only take it out if the infection does hit it. We will see the normal signs if it does, so I just need to really keep my eye on Kevin's head.
Please let this work!!
On another note - Kevin just doesn't seem to want to go to therapy anymore. He isn't allowed to have Pam as his therapist because she is for the patients in the hospital, and although the new girl is very nice, she just doesn't talk to him at all. I often leave and when I come back he just looks so miserable. Today he just wouldn't go. It's the second time this week and it's only Wednesday. Pam - we miss you!!
And now I am going to go take a hot bath. Kevin is still awake, but Breezy can handle it for a while...
First 2 from the Nov kit!
11 years ago
5 comments:
Hello Leslie,
My fingers are crossed on everything working as its suppose to work.
Maybe you should have a sit-down talk with his theropists in Fla. Each one should be told that they would get more responses and better resulst from Kevin when he is talked to as a person and when they shown some intrest in how he is and what he is doing away from the theropist.
Especially by making certain that they truly understand that Kevin may NOT be able to speak very much BUT he understands a lot more than you think he does and get extremely angry and resentful if they treat him like a block-of- wood.
If you do make it interesting instead of a pain-in-the-backside then you will have Kevin wanting to work with you and that's when you will not believe the results that he can acheive.
Kevin is just like everyone else. When people spend the time to get to know you and care about you then you want to do your best to please that person.
I believe the military refer to this as "Motovation". The more the "Motovation" the better the results and it usually becomes a 2-way street.
Also, "Try" to get a video interview with Pam before you leave on what she does with Kevin to "Motovate" and "Inspire" him to want to do theropy. That video might help to get your point across with the theropist in Fla.
Just some thoughts and suggestions.
Hope they help.
Miss Em
Austell, Ga.
Hoping and praying that the fluid in his head is draining on it's own and that you guys will be allowed to go home for a time without incident.
That therapy situation just sounds horrible. It seems that any time Kevin is removed from his 'routine' there is a slight step back in his progress (and his attitude towards the goal) but he does eventually get there.
The video idea that Miss Em has to help the other therapists get the picture is a good idea, I think. Anything is worth a shot if it means getting Kevin to therapy. I feel so bad for him that he cannot just have what he 'wants' - Pam as his therapist in this instance - but hopefully he will realize in time that he has to work with what he has.
Perhaps if he knows how proud Pam would be of him making progress with another therapist, that could be motivation for Kevin? Just a thought...
Hope all is well and that you had a peaceful bath.
Prayers continuing...
A.
My prayers are with you all as well.
I've been wondering all day how Kevin has been doing without his drain. How nerve-wracking for you! I'm praying it goes well and that we're all amazed at how the fluid drains properly.
It's so great that Kevin played checkers and that you've noticed him becoming more like his old self. Every improvement he makes is so encouraging. I hope the situation with the therapists can be worked out. That would be a shame if no one will treat him like a normal person just because he can't speak. You'd think of all people a therapist would understand that!
Take care. I'll be thinking of you and praying for Kevin's improvement.
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