Thursday, December 30, 2010

I forgot to add this...

Kevin being the goofball that he is...

Day 945 - Dec 30, 2010

Today I broke down and finally went to a doctor (at my parents insistence - geez). I have been really sick and I am just so drained - both emotionally and physically. I really tried not to go - I have no money and I have no insurance, but I was worried about pneumonia and passing it on to Christian when he gets here.

So I did go and the doc told me that I don't have any real problems with my lungs, but that my lifestyle isn't going to let that cough and all the other symptoms go away on their own. He wrote me out 3 scripts and I asked him to put them in their order of importance. I know how much meds can cost and I was pretty sure they weren't all going to be in my budget.

I did manage to get two of them, but I had to pass on the third. I am hoping the steroid and inhaler take care of things. We shall see.

I think I am going to have to sit down with some of the folks at the VA here in SA. I need more help. I just can't keep up at this pace. The VA here refuses to give me more than 15 hours a week and I use those hours to try to get other things done that I can't do while Kevin is underfoot. I should be using them for rest, but there's no time for that. It really needs to change.

And I forgot to tell you guys that yesterday I had to argue with a VA employee who called to remind Kevin of an appt next week. I told her she had to talk to me and she flat out refused. She was determined to speak to Kevin and wouldn't tell me anything. I tried to explain that he can't talk and that I manage all of his appointments, but she wasn't interested in hearing what I had to say. I had to call Mary today to find out if my guardianship papers are on file and they are so I guess I'll just chalk it up to someone not interested in doing their job fully. She really just needed to look closer at our file.


Can you just tell I don't feel good? I feel snarky and tired.

Day 944 - Dec 29, 2010

Today we drove to therapy only to find out that the speech therapist had called off. We just jumped back in the car and came home.

Oddly enough, Kevin's iPad quit working today. It was fine on the ride up to therapy, but it wouldn't even turn on on the ride home. I thought it might have needed synced, but iTunes wouldn't even acknowledge it. So I researched the Apple website and found that you can hold two buttons down simultaneously to 'reboot' it. Thank goodness for the internet, huh? That worked and all was right in Kevin's world again, lol.

Kevin and I didn't really do much else today. We played the Wii for a bit and then he went to his room to watch a movie.

And I'm not sure if he called Ronnie or if Ronnie called him, but they talked for a while too. I am excited to say that Ronnie and his girlfriend are coming to visit in a couple weeks! Kevin is beside himself. He is just so excited! He just kept walking around the house saying "YES!" all night long.

And now I really need to get some sleep. I have to take a hot bath first though - I am just so cold lately...

Wednesday, December 29, 2010

Day 943 - Dec 28, 2010

We didn't do too much today. It was rainy and kinda yucky so we mostly stayed in. We did go to the movies this evening though. Kevin and Johnny went to see one and I went to see another. And that pretty much sums up our excitement for the day.

I forgot to mention yesterday that my mom went back into the hospital the day before and it turns out she needed a cardiac stent as one of her main arteries was 80% blocked. She is doing well now and actually went home today.

Breezy is doing well too. Still no Christian though. Soon...very soon...

Tuesday, December 28, 2010

Day 942 - Dec 27, 2010

Today Kevin had to go to speech therapy. His OT and PT sessions have run out and I'm waiting for the VA to 'renew' them. It's been a couple of weeks already so hopefully they get on it soon. I really don't want him to lose any of what he has gained.

We also had the railings installed in the garage today. No more having to spot Kevin when he comes in and out of the house from there. Next week someone from the VA is coming to the house to look it over for other potential problems for Kevin. I can't think of anything else, but they are more versed in the world of disabilities.

And it's so wonderful to hear Kevin in his room playing Black Ops on his XBox. Some of his friends from PA are online playing the game with him and it makes me so happy. He wanted this game for Christmas and I wasn't sure if I should get it for him or not. He rarely plays on his XBox because his pinky finger is permanently bent at an odd angle and he can't use it on that one handed controller he has, but he didn't really ask for anything else so he got it. He has been on that thing for hours every day since Christmas. I love it!

Every day more and more of the old Kevin is back. Now if we could only get his balance back enough for him to skateboard...

Monday, December 27, 2010

Day 941 - Dec 26, 2010

Kevin and I did nothing much today. He did go for a walk and that's pretty much it. I haven't been feeling well and slept on the couch most of the day and to be honest, I think I'm just gonna sign off and go to bed already.

Saturday, December 25, 2010

Day 940 - Dec 25, 2010

I hope everyone had a wonderful Christmas!!!! We did! The food was excellent (if I do say so myself, lol) and we all had a great day.

I'm not going to really write tonight, but I am going to leave you with some photos and a special video:

Day 939 - Dec 24, 2010

Poor Kevin. He went for a walk today and probably about 20 minutes after he left I heard the pitter patter of rain. At first, I didn't think anything of it, but then I realized it was coming down harder and harder and that Kevin was still out there. I hurried up and got in the car and started driving around the neighborhood. In the interim, he was calling to have me come and get him. I found him around the corner and by the time I got to him it was a torrential downpour. He was soaked!

It was funny because when he got in the car - he looked at me, I looked at him and we both burst out laughing. He had the appearance of a drowned rat. It was so comical.

After that, we just putzed around all day. I cooked a nice dinner and Breezy and Chris came over and once they left Kevin and I decided to begin our Star Wars marathon. All 6 movies are on TV in a row and we are taping them. We watched Episode 1 tonight.

Well, I think I am going to go up to my room and read a little bit.

Merry Christmas everyone!! I hope Santa brings everything y'all asked for!

Friday, December 24, 2010

Day 938 - Dec 23, 2010

Kevin and I never left the house again today. I think I'm glad we ended up coming home early from the retreat because it gave me a chance to get things done that I wouldn't have had time to do otherwise.

We did get some more cookies baked and then I worked on getting the upstairs a little more unpacked. The main part of the house is finished - and has been for a while, but my area got forgotten about - like pretty much every facet of my life has.

We also Skyped with my family this evening as they were all having their Christmas celebration tonight. Chrissy and her husband both have to work over the holiday so it was best to do it today. It was nice 'seeing' everyone - esp Chrissy as she is pregnant too and is just starting to show.

So now I am going to sign off and take a hot bath and then try to get some sleep. I am cold for some reason tonight and will never be able to sleep until I get warm.

Thursday, December 23, 2010

Day 937 - Dec 22, 2010

Yesterday Kevin's scooter was delivered! He was ecstatic and took it for a little spin around the driveway area. I was happy to see that he didn't really do much with it today though because it's not going to be for everyday use. The scooter is for long distances, like going to Six Flags and places like that. I was worried I was going to have to pull the 'mean mom' card and forbid it, but Kevin has been really working on his legs by walking as much as he does and he realizes he can't ride it all the time. Phew.

His new arm/hand splints were delivered yesterday too. He has three - one that is worn for a while during the day to keep his hand/fingers opened and the other two are to be worn at night to work on his hand and also to straighten his elbow. From what I understand, the 'tension' will be tightened every 90 days or so to extend his arm further.

So far, he is willing to wear each one about an hour, but we need to get up to all night and as much of the day as possible. It will take some time to get him accustomed to them though, so an hour is good at this point.

And today we baked cookies for Christmas. I hadn't planned on it because we were supposed to be away, but since we are home and all of our appointments had been canceled, I opted to do some baking. Kevin helped a little bit, but the kitchen here is tiny and there really isn't room for two in there. I put him to work at the table though, rest assured, lol.

And thanks for the well wishes on my mom. She is home now, but has a CT scan scheduled for tomorrow and they will go from there.

Breezy is doing well too. She goes to the doctor tomorrow and I'm anxious to hear how she's 'progressing'. I was so sure she was having Christian the other night as her labor pains were pretty intense and only 2 minutes apart. It didn't happen though, obviously, lol.

Wednesday, December 22, 2010

Day 936 - Dec 21, 2010

I am going to skip tonight. Kevin and I went to a late movie and then for a few groceries and I'm kinda beat.

Tuesday, December 21, 2010

Day 935 - Dec 20, 2010

Well...we are home already. Kevin was not a happy camper at all. First let me say that Ye Kendall Inn was a fantastic place! I loved it, but it was a very quaint inn and not something Kevin would enjoy.

We did go to the welcoming party and the dinner, but there was not one person there that was Kevin's age. All of the folks were married with children and it was just not any fun for Kevin (he did stay at the party for close to 4 hours though). I pretty much knew immediately that this wasn't going to work, but I had hoped that Kevin would at least stay the night and see how it went tomorrow. No go, though. He was miserable so we just came home.

So did anyone see the eclipse tonight? It's foggy here and I am so disappointed. Can't see a thing in the sky, darnit!

And to end, I would like to ask that y'all keep my mom in your thoughts. She was admitted to the hospital yesterday with chest pains. She hasn't had a heart attack (thankfully), but they are still running tests as her left arm is still numb. My dad thinks they will release her tomorrow, but we'll see. Keeping those fingers crossed...

Monday, December 20, 2010

Day 934 - Dec 19, 2010

Tonight we went over to Breezy's for dinner. Her and Chris cooked some lemon pepper chicken and we all pigged out. We were thinking about going to see some Christmas lights after dinner, but we were all too lazy to drive to the other side of town, lol.

Breezy is having some pretty serious contractions tonight too, as well as a LOT of pressure. I said - I'll bet Christian comes while we are gone. It's ok though - it's probably not too much further to the hospital from the retreat as it is from our house. No matter what - we'll be there!

So tomorrow we are headed about a half hour north to Boerne, TX for the wounded heroes retreat that is sponsored by the Military Warriors Support Foundation. I have no idea what to expect, but we are both looking forward to it. It's a 4 day/3 night retreat with different events taking place daily. I understand it's a very quaint and artistic town with tons of things to do. And luckily, it's going to be in the mid seventies and sunny all week too! (did I hear a collective groan from all you northerners stuck up there in the cold? LOL)

I will be taking my laptop and assuming there is an internet connection, will post as the days go by. I'm not sure if there is though as the hotel was built in the 1800s, but I am thinking they have added modern conveniences. If you don't hear from us though - know that that is the situation.

Sunday, December 19, 2010

Day 933 - Dec 18, 2010

We had company today. Daniel (who was with Kevin during the attack) came over to visit Kevin this afternoon and I know Kevin really appreciated it. It was the first time they ever got together out of the hospital environment and I think they had a great visit. I'm just glad the ramp was put in a few days ago so that Daniel COULD come to visit.

Here are some photos of the guys in front of Daniel's new car:

It was interesting to see the hand gas and brake device that enables Daniel to drive. If Kevin is ever able to drive - it's how he will too.

Here are a couple more pics from the other day too. One is of the hat Moe sent Kevin for Christmas and the other is a shirt that the other Leslie sent.

Cool, huh?

Saturday, December 18, 2010

Day 932 - Dec 17, 2010

We ended up having a lazy day today, which was totally unexpected. We were supposed to have an appointment with the burns plastic surgeon, but Kevin wasn't feeling well this morning, so I had to cancel that.

In the interim, his speech therapist has the flu so she called and canceled today's session, leaving us with a totally free weekday.

I made about 3 hours of phone calls and got a LOT of things done. Kevin pretty much stayed in bed all day until this evening. He did get up for dinner and then we took Breezy home and stopped at Home Depot for a couple of things.

I am trying my darnedest to get over a bad cough. I woke up with it maybe a week ago and although it may be slightly better than it was the first day or so, it just won't go away. I am assuming this is why I am so tired, because every time I sit on the couch I start nodding off.

One great thing is that Kevin is letting me sleep some at night now. I am usually out by 3am and he rarely calls me after that so I am getting some quality zzzz's lately. I want to believe that he is sleeping as well, but I can't say for sure. If he's not, he's keeping himself entertained - which is just great. He must also be doing things for himself - which is even better, lol.

As for my decision on whether to post every day - I still don't know what I'll end up doing. I think we just might have more days that I skip as there are just so many days where we do nothing exciting. I do appreciate everyone's input though!

I think, in part, it's also because I am just tired and in that holiday funk. It's going to be weird not having my whole family at the table at Christmas. I have to think that this could be my dad's last Christmas and that makes it hard too.

But, I guess there's no sense in complaining. It is what it is and I can't change it so I guess I'll do what my favorite Airborne guy says "Wipe the sweat and drive on!"

Thursday, December 16, 2010

Day 931 - Dec 16, 2010

I'm going to skip again tonight. We have hit a very boring time in our lives and it's hard to come up with things to say more often than not. Lately I've been thinking about not writing every night, but this is such an integral part of our lives that I'm not sure I can do it, lol.

Still, it may happen. We are just so predictable lately (therapy, docs, walks, etc) and it has to be just as boring for you to read about it as it is for me to write about it.

What do you think? I just don't know...

Day 930 - Dec 15, 2010

Kevin and I just had one of those days today. You know - one of those days where you just get on each others' nerves?

He was in such a mood that he even refused to go in to therapy. I went in and waited, hoping he would eventually get over it and come in, but after a half hour I realized there was no sense in waiting any longer. He just wasn't getting out of the car.

He did take a nap on the way home and it seemed to help some, but honestly - he was just in a snappy mood, which in turn put me in one too.

Yeah - it was just a long - and very rough - day.

Wednesday, December 15, 2010

Day 929 - Dec 14, 2010

A question for all of the folks out there that do acupuncture - does it work immediately? And if not, how long until it does start working?

Kevin had it done this afternoon and he did great lying there for the half hour with the needles in his face/head, but he says it has made no difference to his pain level. Apparently, he is always in pain, but it's not so bad most of the time. When it gets that way though, is when he asks for Tylenol.

So I was just wondering if it should be immediate? The doctor mentioned if it worked some we would do it again in 2 weeks, but I never thought to ask when it would work.

Anyway, after we saw the doc, we went to the burn ward and visited all of our friends. We haven't been there for a couple of months and it was nice to see everyone.

After that, we met up with Johnny and he and Kevin went off to go to a skate shop and I picked up Breezy and brought her to our house. I figured our couch was just as good as hers and it would at least get her out of her living room for a couple hours. She is still having minor, sporadic contractions (all of them in her back), but she goes back to see the ob/gyn on Thursday. I'm anxious to see what is said.

Kevin and I are going on a wounded warrior retreat next week, so I will lay odds that she has Christian then...

Monday, December 13, 2010

Day 928 - Dec 13, 2010

I didn't sleep very well last night and I am just so tired tonight. I think I'm just going to skip and try to get my snooze on.

Tomorrow we have our first acupuncture appointment - both Kevin and I are excited about that! Will let you know how it goes tomorrow sometime. Wish Kev luck!

Day 927 - Dec 12, 2010

Well, the docs managed to get Breezy's labor stopped and she has been sent home with orders for bed rest for at least the next week. She is feeling much better and hopefully we have a couple more weeks before Christian arrives.

Kevin and I didn't do much today. I spent the day getting this house scrubbed down and Kevin went for his two walks and then just generally lay around the rest of the day. We did watch some tv together (we are watching the Indiana Jones movies consecutively), but that's really it. It was just a very boring day.

I am going to answer a few questions tonight though. I am so far behind.

Hallie - I see it's cold and windy up there in PA, but let me tell you - it's only 39 degrees here right now. It's been downright cold, but at least Kevin and I had hot cocoa with marshmallow fluff tonight. Still, I'm sure it's much yuckier up there... How's your husband doing?

Bryan - thanks for taking care of the water leak. I knew when the bill more than doubled that something was wrong. I will call Chris tomorrow and discuss the bill. Say 'hi' to JT for us!

Jessica - I had my sister bring my fake tree when they came at Thanksgiving. We decorated it last weekend so it's all ready to go. I have heard that real trees are quite expensive here, but that's coming from someone who lived near the "Christmas Tree Capital of the World" - Indiana, PA - where they were pretty cheap.

Jessica - you also mentioned about the woman who woke up speaking with a foreign accent - that is actually very common in this experience. Do you guys remember the roommate that Kevin got while in Tampa for the one night? The guy that threw his pants at me and was screaming at me and Kevin the whole time? Well, he woke up speaking Spanish. He hadn't been able to speak any other languages but English before his injury, but he couldn't understand a word of English for a while. From what I gather, this is also common. It has always made me wonder about the possibility of reincarnation. I else can you wake up as a completely different person speaking a different language altogether?

Nicolette, go for it. Kevin was in the Army as part of The Herd - 173rd Airborne Brigade Special Troops Battalion (I sure hope I got that last part right). He is now discharged.

Speaking of...Leslie - Kevin got his hat and shirt! Love them both! Thanks so much!!

Aggie - woohoo!!!! Call me after you get home from work either Mon, Wed or Friday while Kevin is in therapy if you can. We'll catch up then!

Ok - I know there are so many more than need commented on, but I am going to sign off and go read for a while.

Saturday, December 11, 2010

Day 926 - Dec 11, 2010

We had planned to go to Six Flags today, but it didn't work out. I had an appt for the cable guy to come out and fix the tv, but he didn't end up getting here until really late in the day. By the time he left, it was just too late to go, so I can only hope we have another warm weekend day before Christmas.

So...both Kevin and I have been sitting by the phone all night talking to Breezy because she is in preterm labor. We just hung up again and the docs have decided to keep her in the hospital and medicate her every half hour to get the labor stopped. She has started dilating and she is 50% effaced, but her doc wants her to hold off a while yet. Some docs would allow her to deliver this early (due Jan 12), but the nurses told her this doctor is overcautious. I'm good with that. The longer Christian stays where he's at - the better.

And poor Kevin. He is addicted to Angry Birds on his iPad now and he downloaded the Christmas version and just found out that each level becomes available each day up until the 25th of this month. Hehe. He whaled through the first 11 levels today, but has to wait until tomorrow, the 12th of Dec, for level 12. Hilarious!

Well, I think I am going to try to get some sleep. Gosh knows if Breezy is going to end up needing us or not, so I want to be prepared.

Day 925 - Dec 10, 2010

Can you believe that Kevin can count up to 50 now? Yes, he stumbles over some of the numbers (ten, twelve, etc), but he can do it with a few little nudges from either me or his speech therapist. He also has almost all of the days of the week down pat as well. The other day I taught him to say "come here" and he also says "I'm going to walk". I have tried to get him to say "I'm going FOR A walk", but no go. No matter though - I'll take it. And so will he.

He isn't getting frustrated as often as he used to. Partly because he is able to say much more than he used to and I think in part because he has just accepted that he is limited and needs to find alternate modes of communication at times. The therapist even mentioned today that she is seeing a difference in the last few weeks and I totally agree.

All around, really. I really need to video tape him so that you guys can all see the difference too. You would just be amazed.

Friday, December 10, 2010

Day 924 - Dec 9, 2010

Today was a really good day. We just stayed home and did things around the house. We had a guy coming to measure the steps in the garage for a railing so we needed to be home. Kevin has fallen there a couple of times and Breezy even fell last week because they just weren't designed very well. I'm not really sure what the architect was thinking, but hopefully the railings will help.

The VA is putting in a temporary ramp as well to the front door, but we always park in the garage. The ramp will be for those times when Kevin just isn't feeling well and can't make the three steps into the house.

So I haven't mentioned lately how well Kevin is doing with the pain. There are often days where he takes no additional pain meds at all - today being one of them. Most days he takes one or two doses of Tylenol and that's it. I think he's had one oxy in the last 10 days or so. This Aleve has really made a difference.

I think it helps too that he enjoys living here much more than the apt. He is able to walk one or two times a day and we don't have to worry about the elevator not working. I think we were nervous every time we left the apartment.

This is really just a more 'homey' place. Much brighter and although the sq footage is nearly the same - it feels much bigger. It probably doesn't hurt to have some of our own things too, eh?

Case in point - I had to purchase Kevin a shelf for all of his movies since my sister brought all of his old ones from FL and after Johnny put the shelf together tonight, Kevin spent FOREVER organizing them. He is such a movie collector and he was just so excited when he opened the box from Florida.

Ok - Moe just called so I am going to sign off and BS with her for a while.

Thursday, December 9, 2010

Day 923 - Dec 8, 2010

Kevin has been very needy tonight - something he has been doing much better about - so I am going to just post some pics of the baby shower and then sign off.

Wednesday, December 8, 2010

Day 922 - Dec 7, 2010

It was a crazy day today. We had numerous appointments at the house through the afternoon (heating, repairmen, blinds, etc) and then Breezy had her baby shower after work. The ladies she worked with threw it and it was so enjoyable. Kevin, Johnny and I all went and I took a ton of photos. Unfortunately, I am just too lazy to download and edit the pics tonight so I will upload some tomorrow evening.

So did y'all know they make Steelers pacifiers? Hehe. Yeah - she was real excited to get those cute little Steelers onesies and binkies. Quite a few of the other guests groaned when they saw them because we are in Cowboys country here and they all must jokingly argue with her about her Steelers fanaticism. It was kinda funny, lol.

But seriously - I believe Kevin enjoyed himself. I wasn't going to take him as it's mostly a girl thing (although there were other men there), but Breezy asked for him to come and he agreed. I had Johnny drive too, just in case they wanted to leave early, but they stayed the whole time.

After the shower, we ate dinner and then Kevin and I went for a long walk. He took me on his 'path' so that I know where he walks every time he sets off. He walks the entire development, up and down every street, around each cul-de-sac and up the path to the elementary school playground. Quite the distance it was, that's for sure. I am very proud of him for being motivated enough to walk this distance at least once a day.

Tuesday, December 7, 2010

Day 921 - Dec 6, 2010

Kevin had therapy today and I was so happy to hear Roz (his speech therapist) say that they have really hit it off and Kevin is willing to now work with her no matter what she is asking him to do. We are working on more phrases (as opposed to single words) to help us at home. Things like "help me" and "come here" and "I got it". I like that we are working together too to keep the same phrases active in his mind on his 'off therapy' days. We keep each other informed as to what we are working on and what is pretty much down pat.

With Kevin, most of the time it is just about repeating and repeating until he has it embedded in his mind. Sometimes though - he just can't get the syllables to work together. For example - you too. I can't get him to say those two little words together for anything. He can say 'you' and he can say 'too', just not one after the other.

And sometimes he needs inflection to be able to say something. Oddly enough - he can say "I got it", but only with a British accent (kinda like - by golly, I think I've got it). It's why he picks up on movie quotes so easily - it's all about the melodic note to the phrase.

No matter what though - he is really doing fantastic with his talking.

Sunday, December 5, 2010

Day 920 - Dec 5, 2010

Today was a nice day. Kevin and I went for a drive up into the hill country today and just gawked at all the multi-million dollar estates. It was such a sunny, yet chilly, day and perfect for a drive.

Other than that we didn't really do anything, so I think I'll just skip tonight.

Day 919 - Dec 4, 2010

Today was a pretty good day. We are both starting to feel better and it's about time. I spent the better part of the day getting more unpacked and organized. I also cooked a nice dinner and Breezy and Chris came over to eat and then we all put up the Christmas tree. Kevin wasn't there to help though because he went for a walk. He went for two today - in the hopes that he will lose some weight. I keep telling him it's more what and how much he eats and drinks, but he isn't willing to go so far as to cut back on that, lol.

He is doing great on the walking too. He didn't take his cane either time and he probably walks between 30-45 minutes each time. His stamina is getting better and better and his balance is too. It's unbelievable how well he is taking the step up onto the sidewalk now. He still has to stop and 'ready' himself to do so, but he doesn't have to use anything anymore to push himself up. I will have to try to remember to take some video soon.

And that's really about it today. I never left the house and Kevin only did so while walking. He wanted to ride his bike tonight, but I won't allow it while it's dark out. Tomorrow is another day though, right?

Friday, December 3, 2010

Day 918 - Dec 3, 2010

So yesterday Kevin had a dentist's appointment. I am so sad to say that our fabulous Dr. Craig is retiring at the end of the month. We are all quite sad by this fact, but Kev and Dr C made the best of it yesterday.

Oddly enough - they both collect goofy hats. When we went back to FL, Kevin found his Bob Marley hat and knew immediately he wanted to take it and show Dr. Craig. He has been patiently waiting to go see him and the hat even beat out his iPad in importance yesterday (gasp!!). know Dr. C had to try it on, right? Here he is:

And here is a photo of the two of them.

It's just so sad to think we will probably never see each other again. The two of them just hit it off so well.

So while we were in the dentist's office, the vision impairment folks called and wanted to get together to discuss vision therapy for Kevin. Apparently they knew we were on the third floor for the dentist and wanted us to go down to the second floor when we were finished to see them. That was mighty convenient and we were happy to do so.

The gentleman that was 'seeing' Kevin did a few tests and decided to have a private firm do an evaluation to see what Kevin could benefit from. He was (at first) more interested in having Kevin learn to 'deal with' his vision impairment, but I told him that we were not going to assume that Kevin could never get his vision back. Sure, he may not, but with all the other progresses he has made, who can truly assume that he couldn't get his full vision back with a little therapy to remind the brain that he has two good eyes?

So now we wait and see when the firm will call to get the ball rolling on that too.

And we do now have an appointment with the plastic surgeon too. I think I mentioned the other day that we were going to start that process as well.

The month is filling up. Our schedule is absolutely crazy for the next few weeks and I may have to start scheduling days 'off', lol.

Although...I did get a small chunk of time to myself today. While Kevin was at therapy, I went to this little bistro that was featured a while back in the news for being such a homey place. I grabbed a cookie and a bottle of water and just sat on the couch and read for about an hour. They had jazz music playing and it really was a relaxing hour or so. I was the only person in there at that hour and I liked that too, lol. It may become my new home while Kevin is in therapy. I haven't figured out if it's worth the drive back home for the few hours he's there. We'll see, I guess...

Day 917 - Dec 2, 2010

Although I have a bunch of things to mention, I am going to have to wait until tomorrow night. I just can't stay awake any longer. Darn cold!!

Thursday, December 2, 2010

Day 916 - Dec 1, 2010

Today we had to go to BAMC to see the neurosurgeon for a 3 month post-op appointment. He had nothing but good things to say about Kevin's healing process. He commented on how well Kevin is talking now and he said his scar is looking great. There are no signs of any infection at this point either, but the 'danger zone' is a good six months.

While there, we started the process of fixing the indentation of Kevin's left temple area. The doc called a facial plastic surgeon for a consult, with the knowledge that we can't have the surgery done until the 6 month period is past. We know it will take that long to get everything in gear so I am glad we are setting the ball in motion now.

Obviously my fear is having all of this happen again (new surgery, bringing on another infection, causing the plate to be removed again). The surgeon feels there is very little risk (but there IS still risk) to do it this new way - where you basically take fat from your own body and inject it into the dented area. It's done as out-patient too, which is great.

Kevin is demanding that this be done though and I have to go along with his wants. I do understand his feelings, but I will always be fearful. I just can't imagine looking one way one day and waking up months later looking so completely different. Sometimes I catch Kevin looking in the mirror with this horribly sad look on his face. It's so heart-wrenching.

The surgeon also keeps bringing up that he wants to remove Kevin's shunt. My heart flutters every time he mentions it. He somewhat allayed my fears by telling me that he will go into Kevin's stomach first and clamp the tube to see if there is any effect, but still... (if you remember, the shunt tube goes from the top of Kevin's skull, under his skin down his neck, chest and then into his stomach.) I feel better knowing he doesn't plan to just remove it and see what happens, but again - it makes me so nervous. Remember how many shunt revision surgeries we had a while back? Gosh...I don't to even think about doing all of that again.

But...all of this is down the road. As are the few other surgeries he will still need.