Wednesday, August 31, 2011

Day 1187 - Aug 30, 2011

The inspection went really well considering everything was done in halves today - I had half my makeup on, half the kitchen was swept and I was still in half my pajamas (shorts), lol. Luckily they were cool with it and were very understanding that we were just moving in too.

I spent the last 2 days with repairmen of all kinds. Obviously I am having water problems here too so the plumber was here working on that yesterday. We also had an electrician here, the garage door openers were installed, and my internet was down again so the cable guy was here for almost 4 hours trying to get it fixed.

And Kevin and I went and bought a grill over the weekend and it was delivered today and we had a nice cookout for dinner tonight. Johnny and Ness were here as was Breezy and Christian. Our little man got his first taste of asparagus tonight and LOVED IT! To end, here are some photos of him chowing down, as well as a bunch of other ones from the last couple of days.

Tuesday, August 30, 2011

Day 1186 - Aug 29, 2011

I am going to skip tonight. I have an inspection tomorrow by the VA to make sure Kevin's being taken care of (one of those every 90 days things) and really this house is not as clean as I'd like it to be. It's just hard with me still unpacking and working as much as it's turning out that I am.

So I will check back in tomorrow night.

Monday, August 29, 2011

Day 1185 - Aug 28, 2011

We had a good day today. I was determined to stay home all day and we did it! I stuffed a chicken and Breezy, Chris and little man come over for dinner. I tell ya' - that baby is just all over the place. He crawls everywhere and won't stop climbing up any wall or object he comes to. This baby is another Kevin in a nutshell! Kev was crawling out of his crib at 9 months and since Christian is already standing and trying to get out of his, I think it's safe to say that he probably will too. That boy is just so darn cute!!

Other than that we didn't do much today. I scrapped a good part of the day as it's necessary for both my job and my business. Can't beat that, huh?

And Chris and I also got my bed put together. I've been sleeping on the floor and if I'd known it was that simple I would have done it myself this past week.

And now I'm heading to bed. I didn't sleep well at all last night and it's caught up to me. It's way early, but I think I can sleep...

Sunday, August 28, 2011

Day 1184 - Aug 27, 2011

So Kevin and Efren went out last night while I went to work. One of Efren's friends is in a band and he called some of his friends and they all went to see them play. Kevin had a really great time! It is so great to have Kevin doing things that he would normally do, kwim?

Today Kev and I went shopping. His whole one wall in his bedroom is nothing but windows and we need curtains. He wants black ones though and they are just sold out everywhere! I have to do something soon though because his room is very bright and he just doesn't like that.

So anyway, I am scrapping tonight and going to sign off early. Please - anyone being affected by hurricane Irene - please stay safe! Bernice, Rene, Chalkie...and everyone else! You are all in my thoughts!!

Friday, August 26, 2011

Day 1182 - Aug 25, 2011

Today was a rather hectic day and I'm glad it's over with. We did hand in the keys and are now completely moved. Still have some unpacking to do, but I am determined to get it done because we will be moving everything from Florida in a few weeks.

I did have a meeting at work today and had to take Kevin as it was after the store closed and he did really well. He had all the girls laughing hysterically. He is just so darn funny - especially now as he's talking more.

So about the moving...I hired a moving company and they said they would come on Sunday evening. They were way late and when they finally arrived they had me sign the contract and they started putting things in the truck. From what I gather they thought they were done for the day when the previous job ended and were then dispatched to our home. So they were putting stuff on the truck and must have had a little chat because next thing I know they came in and said they weren't doing it. I told them yes they were because I already signed the contract. The problem? You don't get a copy of the contract until they put the 'end' time on it so I didn't have it. They proceeded to unload everything they packed and just kept arguing with us and lying and then Kevin got involved and then we called the cops and as soon as that happened they hurried up and got in the truck and tried to leave (turns out this company does no background checks and hires some not so upstanding people).

Well Kevin was so mad at what was going on that he was standing in the middle of the driveway so they couldn't get past him and both Chris and I had to physically move Kevin and let me tell you - it was not easy! I didn't trust these jerks and was worried they would try to run him down. It was such a mess!

Anyway, we had no choice but to sleep at the new house that night because the cable company was coming first thing in the morning so Chris and I loaded a mattress on top of the van and Kevin slept on it and I slept on the floor. No fridge, no furniture, nothing. Boy was I mad.

We did call another company the next day and they came and took care of it straight away with no problems though. Wish I'd called them first...

Tomorrow will be another very busy day. The garage door opener folks are coming in a few hours and then I have a few other appts and errands before working from 5pm to about 1am. I am going to skip writing because it will be pretty late by the time I get home and I'm sure I'll be beat.

Talk to y'all on Saturday night!

Thursday, August 25, 2011

Day 1181 - Aug 24, 2011

Yay! We finally have internet!

So we are all moved in. Tomorrow I hand in the keys to the old house and I am meeting the water filtration guy there so he can transfer our filter to the new house. That will be it!

Kevin's loving his new bedroom and I am loving having a nice big scraproom! I was in the hallway before and it was difficult. With my new business I need the space so this is perfect!

I will have to tell you guys the story about the moving company we hired tomorrow night. It's kinda lengthy and I am just too tired tonight.

That being said, I now it's been a week since I really posted, but this moving is rough on this old body. I am still unpacking and organizing and I am just beat. This, of course, is in between all the normal stuff that we have to do too.

So hopefully I'm not so tired tomorrow and can at least get that story in! Nothing like leaving ya hangin', huh? LOL!

Wednesday, August 24, 2011

Still not fixed!

I am dying without my Internet! Hopefully they come tomorrow, but I'm not holding my breath! Will write more when it's fixed.

Tuesday, August 23, 2011

No Internet

I am hoping it can be fixed in the morning!

Saturday, August 20, 2011

Day 1176 - Aug 19, 2011

I am going to take the weekend off and get us moved. We made quite a dent in it today, and we plan to have ALL of the little stuff moved by tomorrow night. Sunday is furniture day and then we will be all in.

Thank goodness too. I have been smelling sewage coming up from the shower drain the last few days or so.

Anyway, I will be back Monday night as we won't have cable on Sunday.

Friday, August 19, 2011

Day 1175 - Aug 18, 2011

We are moving this weekend. After months and months of going back and forth - Kevin decided he wanted to live here in SA permanently. I agreed with him wanting to from the getgo, but there are factors that held me back from just letting him make that decision.

But a couple of months ago while out for a Sunday drive, we found the perfect house for sale outside of San Antonio (kinda out in the country) in a small town called Boerne (sounds like Bernie). I admit that I didn't take any of the things the doctor said a couple of years ago into consideration this time. This house is much smaller - only 3 bedrooms and I didn't worry about ramps and things like that. I did see the docs point back then as Kevin was nowhere near able to handle things like he can now, but he really is doing well at this time so we are just going to go for it and change things if we ever have to.

So the house is on the market in Florida and today we closed on the new house here. I think this is a good move for us as we are both getting settled. Kevin has Jonnie and Efren and I have a job now and we are making new friends. We even just got invited to a Labor Day BBQ!

One super great thing is that the people in this neighborhood are all very 'close'. Tonight all the neighbors got together and met at a cafe for dinner. Kevin and I went and got to meet a bunch of people. I think we are going to fit in well here as everyone was so accepting of Kevin. He was even invited fishing by the man next door (whose wife is a speech therapist too)!

So yet another chapter in our lives has begun. I am feeling good about things lately and I think Kevin is starting to feel more positive as well. We will be going to FL in a few weeks and moving the rest of our things to TX too. It sure will be nice having ALL of our belongings in one state - something that hasn't happened since this all started!

Thursday, August 18, 2011

Day 1174 - Aug 17, 2011

I just looked at the clock and realized I hadn't written anything yet. Yikes! Honestly, I don't have anything to say so I am going to just skip tonight. Catch ya tomorrow!

Wednesday, August 17, 2011

Day 1173 - Aug 16, 2011

Kevin had just one therapy today - PT - and Johnnie took him because I had to go to work. I guess the kids all went to the movies afterward and saw The Smurfs. Kevin's been waiting a while to see that one.

There isn't really anything else to say tonight so I think I'll just go to bed. Goodnight all!

Tuesday, August 16, 2011

Day 1172 - Aug 15, 2011

So on Saturday, Efren came and picked Kevin up and took him to a party! It was the first Kevin really went "out" for the night since we have been here in TX! He was so excited all day to go and I guess he had a great time. I went and picked him up at about 1am and he said he had fun. YAY!

We really didn't do much for the rest of the weekend. Breezy came for dinner on Sunday and that's about it. The baby is sick again, but his first tooth is just about here so hopefully he feels better once it pops through. Poor thing.

And today I started my job. It was fun and I got to meet a few people. I have to work again tomorrow and again on Friday. It's way more hours than I can handle truthfully, but I think it's just because they need to get me trained. I really can only do about 10 a week though as there is still so much to do with Kevin. I am struggling with not knowing the things I need to know from the therapists too. I might have to set up weekly calls or something. Kev still requires a lot of work at home and if they aren't telling me what they are doing it's not being reinforced, kwim?

Honestly, I am almost feeling like I am neglecting him because I'm not there for everything (doesn't this sound like the new mother? LOL)! It's just hard though. It would be different if he was 100% cognitively better, but he still does have just a few issues and when he can't come home and tell me what goes on, I struggle.

I guess I'll just have to figure it out though. I need some 'me' time and there has to be some sort of balance, right?

PS - Jessica, can you pop me an email, please?

Saturday, August 13, 2011

Day 1169 - Aug 12, 2011

Today I got a job! Yep - I did. It's just very part time, but it's at a scrapbook store so I can play in paper all day.

Honestly, it's kind of funny, because I applied months ago and when I never heard anything I decided to start my own scrapbook business. For about a month or so I have been working on a website and finally got it up and running. I owned a kit club many, many years ago and it's pretty much based off of that - the same premise anyway.

So now I will really be playing with scrap goodies all day long. And so will Kevin, lol. He tells me he'll help if I pay him!

But, I am still taking the job because I need to get out and meet people. I think it will do me some good and probably Kevin too.

And sadly, Karen and Jared went home today. We really had such a wonderful week and it was very hard to let them go home. I sure hope they come back soon!

And today was our most wonderful FRC Mary's birthday so we all went out to dinner to celebrate. It was a great time - we haven't seen her in soooo long! Breezy and Christian met us there and Kevin's new aide Efren went too.

All in all a really good day. I think I'm going to take the weekend off though. We have absolutely no plans so I will just come back on Monday night.

Friday, August 12, 2011

Day 1168 - Aug 11, 2011

Today Johnnie and Jared took Kevin to therapy and then they came home, ate dinner and played on the Kinect. Karen and I went to the outlet mall, but we didn't really buy anything. We did stop in the little town of Gruene and had dinner though and it was just such a quaint little place. I want to go back another day and explore some more.

That's pretty much it so I'm going to cut this one short.

Thursday, August 11, 2011

Day 1167 - Aug 10, 2011

Today I had a therapist's appt and Kevin stayed home with Jared and Efren. After Karen and I got back we all piled in the car and went to Dave & Buster's. We have never went on a Wed before (it's always half price) and I clearly see was that place busy! We didn't stay nearly as long as we always have and I'm not sure if we'll ever go back on a Wed - although once school starts again it might be ok.

Jessica - you asked what the mysterious docs appt was from Monday and I'm still not sure, lol. The doc told me it was made in error, but then the physical therapist called and left a voicemail wondering where we were? Not sure if we should have been there or not, but we weren't. He got his therapy though, right? Jumping off a tower and even better, climbing all those stairs, was most definitely therapy.

Oh - and it wasn't a tough climb for him at all. He made it up those stairs faster than I made it to where I stood. I was actually shocked he went up so effortlessly. Apparently he was pretty excited, lol.

Wednesday, August 10, 2011

Day 1166 - Aug 9, 2011

I barely saw Kevin all day today! Johnny took him to therapy by himself for the first time and Karen and I putzed around all day. After the guys left the hospital they went first to an early dinner and then Ness joined them and the four of them went to a movie. It was like so awesome! For both of us, I'm sure!

That being said - I don't really have much to say so I'm going to sign off early.

Before I do though - can you all keep our good friend Chalkie in your thoughts? He has been VERY ill for some time now. He was in the hospital, but has since returned home and is just taking it easy. Love you Chalkie!! And Carol too!

Tuesday, August 9, 2011

Day 1165 - Aug 8, 2011

Today we did something so out of the ordinary. Kevin, Karen, Jared and Johnnie all went zip-lining. Karen's family had went last weekend and they decided to go back and when we mentioned it to Kevin he was excited to go too. (there ya go Moe - Kevin will go with you!)

So we all piled into the van and took off. When we got there everyone got geared up and I took off to the other end with my trusty camera. You can be rest assured that I would not be brave enough to take that step off. Nope. Nosiree.

Anyway, here are all the photos. I already got them ready for print so some of them are different colors, are textured, etc.

You can just tell what a blast he's having, huh? I have to admit to having severe heart palpitations when he was getting ready to jump though. It's so hard letting him do things that I think you have to be crazy to do. But he needs to be as much of the person as he was before the attack and this is who he was - one crazy kid with no fear whatsoever!

Monday, August 8, 2011

Day 1164 - Aug 7, 2011

We didn't do too much today either. Karen and I went to Ross's and the boys went to Game Stop and bought a couple of Kinect games. Kevin is really working out playing on that thing and I am quite sure it will make such a difference to his therapies as it really is quite a workout. He is always soaked with sweat while playing.

Breezy and Christian then came over for dinner as we decided to make homemade Stromboli. Breezy's friend Morgan went back to PA yesterday - bummer! The girls had a great time though.

I got a phone call yesterday that Kevin has an appointment at the VA hospital tomorrow, but I don't have anything in my calendar. I have no clue where we are supposed to be and can only assume it's one of those appointments that is made without talking to anyone first. I emailed the doc and hopefully she emails me back and tells me where to take him. Strange, huh?

And that's pretty much it for today. We always try to relax on the weekends because the weekdays are just so hectic.

Sunday, August 7, 2011

Day 1163 - Aug 6, 2011

We didn't do a whole lot today. Kevin, Mark and Jared went to Outdoor World and just ran around for a while. Karen and I went to Target for some groceries. Yipee, lol.

We had planned to go to Sea World today, but ended up not. It's just too dang hot here (about 107) and none of us wanted to deal with that kind of heat all day. Kevin most definitely couldn't have handled it and the sun doesn't help matters any.

Breezy and Chris came over tonight and we all just ordered pizza and BS'd. A good day all in all!

Saturday, August 6, 2011

Day 1162 - Aug 5, 2011

Today my friend Karen came to visit from PA, along with her husband, Mark, and their son, Jared. We picked them up at the airport this morning and then we kinda all went our separate ways come mid-afternoon.

Kevin and Efren went to the movies to see Captain America and I stayed home and worked. Efren wasn't here early enough (or long enough) for me to go out with Karen, but I didn't mind. I got a lot done today that I needed to do.

Karen and family went to Natural Bridge Caverns and then on to the Riverwalk. They are must sees, but Kevin just can't do it.

Right now Kevin and Jared are in there playing Wipe Out on the Kinect and they are having a blast. What a fun game!

We also have Christian here spending the night as Breezy's friend is leaving tomorrow and they all wanted to go out to a club tonight. He is just learning so much. He now opens his arms for you when he wants picked up and he plays with his bottle more than drinks it. He also is sitting so well, but he isn't 'really' crawling yet. He does get around though!

And now this girl is heading to bed. It is so early but my eyes are so tired.

Friday, August 5, 2011

Day 1161 - Aug 4, 2011

We went to both speech and OT today. I am really thinking that we may have to change speech therapists and go outside the VA.

I was told that there was a meeting about Kevin yesterday and the speech therapist told the physical therapist that Kevin doesn't understand very much and that the PT needs to find a way around it. The PT told her that she didn't agree and the ST I guess was adamant that he doesn't know as much as we all think he does so the PT just gave up assuming that the ST knew more (even though he always understands everything the PT asks him to do).

Honestly, it just can't be this way and I just don't see this working out. She is now setting limits in his other therapies. I have tried for weeks to be cool with her 'inside the box, analytical type of thinking' and it's not how we need to be to help Kevin. Especially as he most certainly doesn't fit into any box that I know of.

So I just sent an email to his doctor and we'll go from there.

OT was good. We got a Bioness splint for his arm/hand (we jokingly call him Iron Man now as he has all these electronics hooked up to his body, lol). To my way of thinking this is our last ditch effort to get any use out of his upper limb. They are already worried that bone has grown and may need to be surgically removed from his fingers, wrist and elbow as he's been contracted for so long. It is just so hard to open his fist so I agree it's possible.

After that he and Johnnie just hung out for a while and then we putzed around the house. He ordered some movies from his wish list at and is into watching them. He is so addicted to that site (and the iTunes store), lol.

That's pretty much it for today so I guess I'll sign off.

Thursday, August 4, 2011

Day 1160 - Aug 3, 2011

Kevin had physical therapy today and it was a little frustrating. The other day I had to talk to the therapist because she was just being too nice and Kevin was taking advantage. She was always 'asking' if he wanted to do something and he was always saying 'no'. So I pulled her aside and told her to just tell him what she needed him to do and he had a rough time with the change today.

I think he's just tired of therapy and I can totally understand that - it has been over three years already. But if he doesn't get some therapy on a regular basis he will start crippling up and we just can't have that.

So hopefully he does better next week when he goes back to PT.

And tonight the new aide "Efren" came and he and Kevin got along really well. He's a super kid and he even talked about taking Kev to meet his friends. It would be so great if Kev could get to meet more people his own age!

We also babysat Christian tonight. Breezy's friend came down from Pennsylvania for a few days so the two of them went to Sea World. I picked the baby up from day care in the late afternoon and he was here until about 10pm or so. What a joy - for both Kevin and myself!

Wednesday, August 3, 2011

Day 1159 - Aug 2, 2011

We had a good day today. Kevin had physical therapy and Johnnie went with us so that he can learn the ropes in taking Kevin to his various therapies. Truthfully I hope it works out, but I'm not so sure. It's just the norm that I am scheduling more appts each day and discussing all the many facets of Kevin's therapy with so many people. I am sure determined to try though - it would be such a nice break to be able to stay home every now and again.

Tomorrow we have a new aide coming as Johnnie can't work the full 41 hours a week for us. Kevin and I are both anxious to meet him as it would mean someone new in Kev's life. I don't really know anything about him yet, but we'll find it all out tomorrow.

And the kids all went to a movie tonight - I think they saw Cowboys and Aliens or something like that. I don't think Kevin loved it as much as Johnnie and Ness, but he said it was good.

Monday, August 1, 2011

Day 1158 - Aug 1, 2011

We had an incredibly laid back weekend and it was wonderful. I got so much done around the house and with a project I'm working on and Kevin got well rested for the upcoming week.

I wish I had more to tell you, but nothing really happened worth talking about. Today Breezy and Christian came over and had dinner with me, Kev, Johnnie and Ness and that's about it.

I guess I'll check back tomorrow night...