Today I left Kevin with my parents for the afternoon and I went and did some shopping. I was supposed to do something fun, but I was still a little blah after all of the emotions from last night so I didn't plan ahead and find something 'fun' to do. So I just shopped for things that Kevin doesn't have the patience to look at. Boring!
Other than that, Kevin did a lot of sleeping today. I think he's trying to catch up because he really hasn't been sleeping well lately. He tries - he really does - it just doesn't work some nights. I suppose it's part of a brain injury...
And I do believe we will be coming home to EB this week sometime. I don't have specifics because of his leave not being approved yet, but I want to take the time to explain/request some things before we get there. Basically - this post is to prepare everyone for Kevin.
First - Kevin can't handle a lot of noise or stimulation. I don't mention it much, but we really do sit in a silent environment about 95% of the time. Very rarely does he watch tv with the sound on (if he has it on it is muted), maybe once every two weeks he will listen to the radio in the car, he doesn't even touch his iPod anymore and most of the time he can't handle a lot of people around. This is not to say he is reclusive because sometimes he is just awesome to be around - laughing and joking and having a good time - it's just that those times are rare throughout the day. I always focus on them though because it keeps us going.
Second - Kevin has no social niceties and if he is over-stimulated he will just wheel/walk away. Don't take offense - it's just him taking care of himself.
Third - I have no idea what (or who) Kevin is going to remember and what (or who) he's not. Please don't be hurt if he doesn't remember you or things you have done together. He honestly can't help it.
Fourth - remember that Kevin can't really be in the sun much. If you see us outside, we won't be out there long and we won't be able to 'chat' unless we go inside.
Fifth - I have no idea how Kevin is going to handle seeing his friends while knowing how much he has changed. The hardest part will be him not being able to talk and it won't surprise me if he takes it hard for the first couple of days. The next thing is going to be how different he looks. He may slide into a depressed mood while we are there and if that happens - we will leave for FL earlier than expected.
Sixth - remember that he can't read everything and doesn't know all of the normal basic things. He also often gets confused. I asked him to turn the light off twice yesterday and he had no idea what that meant. He's come a long way - but he still has a long way to go. And I would like to request that you just take it in stride if he is confused and not laugh at him.
I only ask that everyone understand that Kevin is very different than he used to be - yet in so many ways he is still the same ol' Kev. Don't be afraid to approach him, but just be aware that he's changed.
And I know...I'm being too protective...but honestly - he may not be able to handle all of this and I need all of us to be prepared for it. I am preparing myself too because I go through it all with him and if this trip is rough for him, then it's going to be rough on me too. I have to go in with my eyes wide open and ready for all possibilities and this is my way of doing that.
So sorry if I have offended anyone by asking for special considerations - it's just that I know everyone is going to be as excited to see us as we are to see you and I just needed to put the changes in Kevin out there.
Now keep your fingers crossed that we get 30 days leave and not 15 (or I should say leave at all - you just never know). 15 will mean a whirlwind trip with barely any time there. 30 will give us a week or two. We do need to come home to FL and rest before heading back to Texas before the middle of June so I do want to try to be back here around the 2nd or 3rd...
First 2 from the Nov kit!
4 years ago