I just have to bitch about something for a few minutes. Two things actually. First, the nurses forgot to give Kevin his medicines tonight. He is to get 3 meds at 5pm and I had left because my brother was coming and needed picked up at the train station. So we got back after 6pm and picked Kevin up to go to dinner and I never once thought to ask if he had his meds. It wasn't until we got back at 9pm that the nurse came running in asking if I gave them to him. Why would I have given them to him if we left more than an hour after he should've gotten them? I just assumed that they already did so. And then - to top it off - when they did give them to him, they almost gave him a double dose of the one pill. This is happening constantly because the pill needs cut in half and the nurses just aren't doing it. This is truly just one of the reasons I just can't leave him alone here. I have to be on my guard constantly and I think that's a shame. I honestly can't even leave for a quick trip downtown. Grrr...
The second thing is something that has really been bothering all of us on the 5th floor. I will probably make some people mad venting about this, but it's really just not fair. The problem is that we have a general being treated here. I am not complaining about that as a whole. What I am complaining about is how all of the other 14 patients and their families have to go without because the general wants this or the general wants that. For example - we have a family room where we go to socialize and where we have recreational therapy (patients watch movies, play games together, have parties, etc). We are no longer allowed to use that room for anything if the general is in his room because he is next door and he can hear the noise. So now, all 14 other patients have to try to fit into this tiny room to have our therapies and we don't all fit. Now nobody is going to any of the events anymore. I think it's just so sad that everyone on the floor is penalized because someone high ranking - that demands it all - is in our midst. There are so many other issues concerning him too. If we are in the middle of any therapies or activities and the G wants the therapist - they immediately have to leave us and go tend to him - it doesn't matter if it's our scheduled time or not. If we have our shower at a certain time and he wants to take one - tough on us. I could honestly just go on and on...
It just makes me so mad. I don't think it's fair that one person can wreak so much havoc on everyone around them. And understand - I give him high regard for the service he had given us - but he is no better than my son, or the guy in the next room or the woman in the next. So why are we all paying the price? Why not move him to a different room instead?
Ok, enough venting for the night. (but it still makes me mad)
So (other than my venting) we had a great day today. Kevin worked so hard on his therapies that I was amazed. We are focusing on him being able to stand up without the use of his arms. In other words, we need to strengthen those legs and the butt muscles. We are also working on his balance. So far he has none. If you have him stand still he would fall over without someone there to hold him. (and Jodi - he is just about 6' tall - I am 5'2" and Breezy is under 5')
And did everyone notice that he had jeans on in the videos? Yesterday was the first time that he put on a pair of jeans. I got all teary eyed seeing him look nearly normal for the first time in a year)
He is also doing very well with speech. He is trying to say everything now. Things are getting easier for him to say and I notice more automatic words just coming out. He really does try so hard and truthfully, we have seen amazing improvement on this. We still have a long way to go - but what do we have but time, right?
And as I mentioned - my brother came today. Kevin was utterly so excited to see him. I kept telling him that "Unc" was coming, but Kevin doesn't remember who people are by names. He only remembers by seeing photos or them in person. Kev's eyes just lit right up when he saw him getting into the m-van. And after we all (Chrissy too) went to dinner and Kev and I went back to the hospital, I asked him if he was excited that Matt was here and he nodded his head so hard I thought his neck was gonna snap, lol. It sure was nice to see them play off each other just like they used to too.
And that about sums up my post tonight. I do want to say to all of my friends that I haven't talked to in a long time - be patient. I am on the phone constantly with banks and organizations just working on this house thing. There is no time in the day for me to talk just for fun. Hopefully that will change soon as it's exhausting.
And to MaryAnn - you asked if our addresses were right for donations and you can do that (they are) or you can send directly to the benefit account we have set up for Kevin. I think I was supposed to put that address here on the blog, but I forgot. I'm sorry. I will do that as soon as I finish this post (look down the right side somewhere). Also, the Paypal address is correct, but they charge a fee for every donation so it really is best to go another route.
Again, I do want to thank everyone for all of the help - especially financial. We honestly could not be here with Kev without all of the donations. For this - I will never forget what everyone has done for us. NEVER.
First 2 from the Nov kit!
6 months ago