Here we go again. The shunt quit working. This is the fifth time it has stopped working in 6 months. I kinda thought so yesterday because he slept all day, but his head wasn't getting any fluid on it. It's there today though. Matter of fact, the fluid buildup has nearly doubled in the last 4 hours. He fell asleep at my house and I am just waiting for him to awaken enough that we can go back to the hospital. At this point, he keeps waking up to vomit and the bed is just soaked in sweat. He doesn't have the energy to stand up and get into his chair though so we will just have to wait. I do have permission to keep him here all night if it ends up that he has to - so we'll see. I would personally feel better up at the hospital, but I suppose it's something I am going to have to get used to.
I am still very frustrated on the home situation too, but I really don't have the energy to get into it. I have to be honest - I am the most exhausted I have ever been in my life. I can totally handle the situation with Kevin - it's been 256 days after all, but I can't handle so much of my time needing to do all the rest of the stuff. I hate begging for help to get a mortgage. I shouldn't have to spend countless hours a week on the phone with brokers and bankers and organizations and everyone else I have to talk to. I shouldn't have to worry about FL not registering the van because our insurance is still addressed in PA. (and yes - I am driving an unregistered van - but hey - it is insured anyway ;-) )
I am just honestly so flippin tired. I feel defeated by everything that life is throwing at me and I just want to run away...
First 2 from the Nov kit!
5 years ago