200 days! Sounds like a lifetime, feels even longer.
Breezy and I had to move my room at the Fisher House across the hallway tonight to another room after Kevin went to sleep. We had a room with a connecting door and a family that needed two rooms could have benefit more from it than me, so we made the move.
I am a little of kilter because although it's the same room, everything is flipped. Some of my OCD is showing because I feel strange with everything backward, lol.
Oh well, everything is moved - now we just have to organize it all.
So moving on to Kevin, he seemed to do a bit better today. He finally got a shower - the first in 9 days and I am thinking that may have helped. He ate somewhat decently today too so that always helps.
Today was the first day that he didn't scream while having his head tapped too. Whew! That was real nice.
The docs were also told that the model of his head is on its way. They have to approve the size and shape and then the 'real' head plate is made. I guess his surgery won't be until after the holidays now though. That upsets me because each day we are introducing more and more possible chances of infection when we tap him. If he gets one (an infection), he can't have the flap (plate) put into his head for another 6 months.
Kevin also went for a CT Angio today. His heart rate was elevated yesterday and they wanted to make sure all was well with it. I am thinking it might have been the new pain patch they put him on. They had just changed it and he became severely restless and agitated. Maybe with his head the way it is it's causing a different reaction than normal. Not sure. I am keeping an eye on it though. Luckily - everything came back fine with his heart. YAY!
Well, off to bed for me. Steve - I think it was you that called while we were tapping Kevin's head. I will try to call you tomorrow.
I also contacted Building Homes for Heroes. The people that I talked to were so nice. Keeping our fingers crossed that they can help us out.
First 2 from the Nov kit!
6 months ago