I just don't even know where to begin. First, I was very angry that the docs just left Kevin laying in bed for 4 days while not really even bothering to worry. He didn't eat one bit of food, had nothing to drink either and his head was huge. To be honest, he wasn't even taking any of his meds. I am not sure why they didn't just change his meds to IV form, but they didn't.
So anyway, Kevin was showing signs of a constant severe migraine. He couldn't tolerate any light or sounds. This was fine because we were in a room with no roommate and I was able to keep nearly everyone out. BUT - for some reason they chose Friday to put someone else in the room with us. And to top it all off = the guy is very aggressive and screams all the time and is somewhat violent. In the meantime, they decided to take Kevin down to ICU because he was so lethargic and couldn't tolerate anything. Makes sense right? I mean we go from a controlled room where I can keep it quiet and dark to ICU where it's super bright and VERY loud. But then - there's the roommate. HA!
I went nuts! I mean, seriously? Do they not even get a feel for what these patients are like before they put them in a room with someone else? This guy is so bad that he went in to Joel's room twice. Now Joel is blind. He is very vulnerable and this guy was able to walk into his room twice? How are we supposed to feel safe here? And sad to say, but it took 4 nurses to get the guy out of there the one time. How scary is that that he is supposed to be Kevin's roommate? No flippin way, I say!
And then, we get down to ICU and they are upset because he really doesn't need to be there. He is taking up a valuable bed that can be used for someone that needs it. So they are mad that we are there. I am mad that we are there. And the chief of the hospital comes in and tells me basically - tough shit. Y'all can imagine that that didn't go over too well with me. I did tell him that he is a fucking moron and I stand by my words. He doesn't know Kevin from Adam so who is he to say what Kevin needs? It was obvious he just has the ego from hell and is on a power kick. I told him that my son is an active duty soldier and he deserves respect and he just isn't getting it from this hospital. I told him I think I made a mistake. He said 'Why? Because you are in ICU?" and I said "NO! Because we are in Tampa!" He proceeded to tell me that his staff is excellent and I said "yeah, that's why your neurosurgeons changed the process for dealing with Kevin's head and forgot to put the orders in so that no one but me knew about it? And then they went home? And of course, we have nurses that don't put the correct flow rate on the IVs and leave Kev to eat by himself and missing or incorrect meds all the time that no one but me realizes and I just went on and on.
I am so mad. But you know what? We are stuck here. Kevin cannot be transported as he is right now. And frankly - will he be any better anywhere else? I doubt it. I just wish there was some magical place that can take care of Kevin without any hassles.
This is why though I cannot leave the hospital. I have been here since Tuesday morning and have only left to get two showers and I slept the one night at home while Breezy stayed. I have had to become the nurse and each of Kevin's specialists (ie neurosurgery, dietary, psychologist, you name it). I have to babysit every department because they don't finish their job all the way to the end.
And it really sucks that Moe is here and I can't even visit with her. I haven't seen her in six months and it's just not fair. I did get Kevin into a private room that is so small we can only really have one person in the room with him. And because we were still in ICU most of today, I sent Moe, Breezy and Mathew (Moe's son) to Disney World. We were able to get free tickets and I figured it would be fun for them as I can't leave the hospital.
This all just sucks.
One good thing though - they are pushing Kev's cranioplasty to less than two weeks now. I will have Kevin out of this hospital as fast as he can get better after the surgery. I feel we will be better off and safer in our own home (assuming we have a home and that's one big ass assumption).
Well, I am exhausted and going to curl up in my chair. I do want to say that the chair does pull out into a bed of sorts, but my upper body isn't heavy enough to keep it that way. I just get all comfortable and bam - I am folded back up into a chair. It's ok though. It may not be the most comfortable of places, but I can handle it.
First 2 from the Nov kit!
6 months ago