Kevin is still in a really bad way. I actually took a major nutty on all of the neurosurgeons - including the head honcho - today. They just aren't doing anything for him. They are 'pumping' or 'priming' the shunt ever hour now and it's not caused any change in the last 30 hours. Hello? I think that means it's just not working!
There answer is to do the cranioplasty in 2 weeks. In the meantime, they are going to stick a needle in his head and drain fluid out every day until then. This is VERY painful for Kevin and I have to hold him up away from the bed while they do it and he just screams and cries the whole time (about 20 mins).
You know what? I just can't even write anymore tonight. I am just too upset and I am hoping it will be better tomorrow after I get some rest. I have been at the hospital for about the last 22 hours (with the exception of an hour and a half to take a shower and go to a meeting for his VA benefits) and I am tired. I will explain more tomorrow night.
And for those reading tonight - keep Breezy in your thoughts. She is staying up there with Kevin tonight as I am just too exhausted. He will not allow both of us to leave at the same time and one of us now has to sleep at night up there with him. I feel confident that she can do it - but it's still hard to sleep in the chair and keep an ear out for every noise he makes. Not to mention the nurses coming in every hour to prime the shunt...
First 2 from the Nov kit!
7 months ago