Hmmm...I am a little disappointed today. The neurosurgeon came and said that the gauge on the shunt just got misaligned and that's what caused the buildup of CSF. He did use the magnet to put it back to where it needs to be and he felt there was a difference after only 30 minutes, but I don't see any difference at all and it's been 13 hours since he left.
He is planning to come back in the morning to check it again and I am thinking he will test further then. Who knows...maybe I will come in tomorrow and it will be smaller and I will have been wrong, but I really don't think it's a gauge issue. And poor Kev is still in some pain. Sometimes he will just move and grab his head. I can only assume it's kinda like a migraine.
Other than that, it was a quiet day today. My mom and sister took off with my niece and went to the beach. And sadly, my dad ended up in the hospital in PA today. And my mom is here which makes it even worse. He is going to be ok, he just needs a stress test in the morning after having some chest pains today. My mom isn't going home until Wed afternoon, so my other sister is having to take care of everything on the home front.
So I am going to hit some of the questions y'all have asked.
Brenda - no box yet. I think things may end up in the mail room here at the hospital for a day or two. Let me know if you get a delivery confirmation and we will test that theory out.
Sgt G - the camera you sent arrived! Guys, this man and his wife sent me a new digital camera so that there are no blurry smiling pics any more. It has some kind of smile shutter and it also handles the blurries (I know - that's not a word, lol). And it came at a great time because Breezy took my camera home with her. Now I just need to figure out how to use it...
Jessica - although I am not 100% sure, I do believe the reason he can't sit long is because he has to rebuild all of those muscles from them not being used at all for months. We have been trying to strengthen them, but it's hard because when something like this shunt thing happens - we have to start all over again because we go days without being in the chair. And thanks for the link of the bullrider story. It was so understandable.
Kristen - tell Travis "hi" and that someday he will be able to go to the VA hospital in Butler to visit. I feel bad because there has been no time for me to call you guys at work and I miss our chats! Hell - I just miss all of you so much! I know you guys all read the blog so here is a personal "HELLO" to my girls at work!!
And that also applies to other friends from work (Cheryl, Susan, Jen, etc). Thanks to everyone for your continued support.
Jenna - that is very interesting about shunts having problems if a person is healing too quickly. I wonder if that could be our problem? And thank your husband for him thinking that the other families here may fuel themselves with the progress Kevin has been making. That puts a new spin on things.
So there we are. A few less emails in my inbox. And hopefully tomorrow is a better day.
First 2 from the Nov kit!
1 year ago