Things were a little bit better with the pain today, but he has vomited quite often. It's my personal belief that all of this is due to too much fluid being drained off his head too quickly. He literally went from a bulge on the top of it to it being sunken in about 3 inches or so within the last few days. The prosthetics dept also fashioned a 'sling' of sorts for the sac of CSF that is right above his left ear and that has been shrinking as well leaving a lot less fluid around his brain than he has been used to. Of course, we aren't sure about this, but it's something to consider.
I did leave the sling off today (it pushes the bulge upward forcing the fluid to move up into the recessed area and drain off) and we didn't have an episode like we did last night. I am going to hold off on using it over the weekend and see if all goes well. I will then try again on Monday and see what happens.
I am also proud to tell y'all that Kevin sat up by himself for a full 23 minutes today. Yeah! He went from 1 full minute the other day to 23 minutes today - astonishing, huh? The only thing that worries me is that he can't hold his head up at all when sitting like that or when standing. It is dropped down with him looking at his toes. It's not due to the neck muscles or anything like that, I think it's the vertigo. I'm not sure though and we are just going to have to work on that.
And yesterday he did stand up on this machine and he was able to for a full 7 minutes. He was in a lot of pain while doing it, but he managed it. I will have to wait to post those pics as I forgot to download the pictures earlier and Kev is trying to go to sleep so I don't want to get up and grab the camera and cord.
I also had a long talk with the doctor yesterday because I was concerned that we have seen no true signs of his right side working in the 5 months since the attack. He did admit to me that he feels Kevin may be hemi-paralyzed. Meaning one sided. He stressed the fact that Kev is young and has great family support, but it concerns him as well that he hasn't really moved anything yet.
So I then went to the physical therapist with the same question and she doesn't agree. She thinks he will be weak on the right side, but that he should have some movement. We did start that electro-stimulation on his shoulder (as it is pulling out of its socket) and hopefully that will make a difference.
I guess time is going to tell on this one, huh? I have to admit that there is always hope, but being realistic - the outlook isn't too great. You typically see movement within the first 6 months if you are going to see it and we are near the end of that window.
But hey - we can deal with it! As long as we have what we have mentally...what's a little bit of paralysis? Shoot - Kevin will just be racing his wheelchair around instead of a skateboard, right?
First 2 from the Nov kit!
5 years ago