Today was a pretty good day. Johnny came and spent the afternoon with Kevin. I cooked dinner and Mary popped over with some paperwork so she ate with us and then Kevin and I played a few games of cards.
Another one of those days where there really isn't much to say.
Michelle Long - we really wanted to come to Riverfest so bad. Kevin asked me numerous times if we could go and I knew it just wasn't possible without the plate in his head. I seriously hope we can be there next year - maybe, just maybe - things will have settled down medically by then.
You also asked about Kevin sleeping through the night - no, it's not really happening. He does sleep some mornings, but even that is sporadic. He is doing better about calling me on the phone once I go to bed, however. Some nights, I just tell him I am going to sleep and I don't hear a peep. Some nights, he calls me 20 times or more. Most nights, he calls maybe 5 or 6 times. It still takes forever for me to be able to go to my room though. It's like a child where they stall and stall because they don't want to go to sleep.
I do try to be understanding about it and I will say he doesn't do it on purpose though. I know that Kevin can't think ahead so he won't realize he needs something until his eyes light on it or something pops in his head. It's just frustrating for me because sometimes I just can't keep my eyes open another minute and when I am calling it quits for the night - he is frantically trying to get all his ducks in a row. It's why I try to stay awake until he goes to sleep, but unfortunately - it has caught up to me and I am just too tired to do it every night anymore.
But, no matter what - he is doing more and more awesome every day. Cognitively he has made such great strides and he is really talking more and more. He's quite the miracle, my boy is...
First 2 from the Nov kit!
5 years ago