Today we went back to the hospital to have more fluid put in Kevin's tissue expander. I am so very happy to tell you that there was no sickness following the event. Thank goodness!! I kinda figured last week it was more the CT scan and I have some folks looking into whether they used contrast the last few times he's had them. The PA today felt that maybe he was having a reaction to it and I totally agree. I would guess that it's either that or a fluid issue from him laying flat on the table and then sitting up suddenly.
And I just have to say that I really appreciate having good docs and PAs that know their patient inside and out. Kevin was really struggling to get on the bed far enough for the PA to be able to inject him while standing on the opposite side of the bed and the PA questioned why Kevin was struggling so much. He remembered that Kevin got around a lot better months ago and we had a long discussion about it. When we finished the injection, he called a doctor and they discussed therapy there at BAMC.
I believe I will be getting a call within the next week for Kevin to go to the Center for the Intrepid for therapy. I have to remember to talk to Mary about whether this is TBI therapy or plain OT and PT. I am just glad that Kevin is feeling well enough now to get out of the house and go to therapy. I doubt he will be able to go for hours like we were getting up to in Tampa, but at least we are going to get rolling again.
So anyway, on the way home from the hospital we stopped at Walmart and Kevin bought himself some new skateboard XBox 360 game. I hope he actually plays it. Maybe he and Lea or he and Johnny can get to it soon. He really just needs to practice with that one handed controller and I'm quite sure he will be great at it if he would.
And that pretty much sums up our day. We both took a nap this evening so I didn't even get to call my parents tonight. Sorry Mom and Dad. Will catch you tomorrow!
First 2 from the Nov kit!
5 years ago