Today we had a nice visit from the head of the Polytrauma center here at the VA. Mary, our wonderful FRC, came as well.
It was mostly a visit to just have him get a feel for Kevin's needs and to see how he is progressing. We also came up with a tentative therapy plan and we can only hope it comes to fruition. I really like this guy and I really want to be able to work with the VA, but they really need to walk the walk and not just talk the talk.
I do understand now why the people in Tampa say it is a good thing for these TBI patients to be near a polytrauma VA. Those VA hospitals have the funding necessary to do what is best for these types of patients. Other VAs around the country do not. Personally I think there is something way wrong with that picture. It shouldn't matter if you want to live in Washington or Connecticut. If you are a vet - you shouldn't have to go without just because you don't live in the right place.
Of course I could just go on and on about this, but what's the sense, right?
So we had a new development in the aide area. Johnny is now going to come two days a week (instead of 1 and Lea will come 1 instead of 2) and one of them is going to be on Thursday nights. He was here from 6-11 tonight and it was great! I went out for a bit and then came home and watched tv - UNINTERRUPTED!!!! Holy crap! It was so nice.
Nights are always the hardest as Kevin is settling in and needing me the most. This was a really nice break and I look forward to next week already, lol.
And Scott was released from the hospital today. Shocking, huh? I am nervous for my sister, but there's really nothing I can do. He is remembering more and he is able to walk (his pelvis was not broken - thank goodness!), but he is still very confused and wakes up screaming at times in both confusion and fear. Poor kid. I wish I was there, but I will just have to support them via the phone, I guess.
And that pretty much sums up our day today. I am going to leave you with a photo of Kevin and my mom from Christmas time (I think). It's a pic of Kevin in his coon skin hat that he got at The Alamo last fall. I used an action (just learning about these) to make it look like an old time black and white photo and I just love it like this. Cool, huh?
First 2 from the Nov kit!
5 years ago