Day 718 - May 17, 2010

Kevin did fantastic today. We had to wait so long to see the plastic surgeon and he really did well with the wait. Remember when he wouldn't?

So we did finally see him and it turns out that the neurosurgeon needed to be in on the conversation. They are going to let me know as soon as they figure out when the surgery will be - June or July.

They also aren't sure exactly where they are going to place the expander. They typically put it where the skin is needed, but with nothing to protect the brain they just can't do that. So they are discussing on top of his head. I am good with that. It will still allow him to sleep and he can still cover it with a hat when we go out in public.

They also plan to fix his left eye because it had too much skin put in place during the last release. They are discussing the right eye too as it's starting to pull down a little bit. He also has a lump on his right ear that is going to be removed and they are going to 'cut off' some of the deep scar tissue along his neck on both sides. Oh, and botox too in his right arm (although occupational therapy needs to be in place first).

I am not sure if they plan to do all of that at once or if some of it will wait until the following surgery. I guess we'll find out soon enough.

So all in all we were out and about for roughly 6 hours or so. We came home and Kevin rested for a few hours and then we needed to go get milk so we headed down the road again. Unfortunately, there was a wicked storm passing through and I have to say I have never seen continuous lightning before - spooky - so we just came back home without getting the milk.

And now I am really heading to bed so I will get to the guardianship questions tomorrow.