So I guess we are going to keep the drain in another week or two and go from there. The doctor we saw today admitted that Kevin is (once again) setting them to shaking their heads in wonder. They just don't know what to do with him.
Today the doc told me that it could be we leave the drain in 6-8 weeks - they have heard of that happening before - and that leaves up to another 4 weeks.
We did stitch the drain tighter to his head so we shall see how much fluid really is coming out. It had decreased, but only once there was drainage on his pillow. We don't know how much leaked out of his head. Tomorrow morning will tell, I guess.
Our actual neurosurgeon is at a conference this week, so I guess we will have to get together next week and come up with an all-out plan. A decision must be made on what to do. We can't just keep twiddling our thumbs here.
On another note, I met with the pain management doctor yesterday. It was so not what I expected. I thought I was going to go in there and we were going to come up with a plan to manage Kevin's pain, but what I was told was that Kevin must be addicted to narcotics and needs to go through detox. After talking to the doctor for over an hour, I feel he may be right. BUT - I don't feel it's time to do anything about it. If we end up having to take the plate out of his head, he is going to need narcotics to get through the pain. We also have too many other things on our plate to add another right now. So I am putting this one on the back burner for a bit - hopefully no more than a few months. Maybe after the holidays...
I have to admit that I called my mom and dad after this appt and just broke down. I feel so bad that Kevin has to keep going through all of this crap. It's just so hard to have to keep going to him and throwing yet another issue on his shoulders. I fear the day when he says 'no more'. When he refuses treatment because he is just so tired of every step adding more problems. I know it exhausts me so I can't imagine what he feels.
But for now, I am just trying to keep his spirits up. I am going to continue spinning everything like it's all better than sliced bread. That's what we do, that's how we get through the day. I've said it many times before - fake it 'til you make it...
First 2 from the Nov kit!
6 years ago