Thursday, October 15, 2009

Day 504 - Oct 15, 2009

Today was a pretty good day. We actually got a lot done. Kevin went to therapy and his beloved Pam was there. They worked a whole hour on his arm and made great strides toward kicking some butt with Botox. While he was there, I quickly ran down to the Pharmacy and picked up some new meds and I think Kevin needed to be away from me just as much as I needed a break from him. We all know he loves Pam so I knew he would be in good hands. Here is a photo of the two of them today:

And today we also now have a consult with a pain clinic to try to get a handle on all of the pain meds Kevin is taking. I have been asking for this for months and I am so glad it is finally happening.

We also have a neuropsych consult in so that someone can give me some advice on how to handle Kevin when he is doing some of the things he is doing. This was something we were supposed to be having all along while at the VA, but it wasn't happening. Not once did anyone sit down with me and give me advice on how to deal with these behavioral issues and when we were being sent there we were told it was part of the in-house treatment plan.

So anyway, it seems like we really accomplished a lot today.

And tomorrow should be an excellent day! I don't want to say anything yet, but Kevin is in for a real treat tomorrow! I wish I could tell you guys, but I didn't make sure it was ok to beforehand so I am going to wait until tomorrow night. Let me just say - he is going to be so excited! (The stars really lined up for this one!)

And I know I have more comments to touch on, but I am going to skip it for tonight. I am coughing like crazy and I have to stop typing every couple of minutes to have a coughing fit. Hopefully I will feel better tomorrow night and can get back to it all then.


Anonymous said...

Wishing you a great day with the "surprise"!
Great picture, by the way... :)

Anonymous said...

It sounds like you had a really good day! Kevin does look so happy with Pam. Thanks for sharing the picture! It sounds like more things are coming into place. That's wonderful! Hope you feel better soon with your cough.
Can't wait for the surprise!
Kathy in IA

Anonymous said...

Kevin looks so awesome with his chubby cheeks.. Keep up the great job of taking care of him!

-Sara F.

Cathy M said...

I am so relieved you are meeting with someone to help you with Kevin's behavioral issues! I have been hoping you would get some much needed help in this area. I really hope you get several meetings with this person and that you gain some helpful insight and skills. Yeah!!

MLG said...

I'm late to the party, but ache for you. Wish I could help, so take this as well meaning and ignore it if you have already been there! Have you tried the "TIME OUT" signal (hands in the shape of a T) when Kevin starts to get difficult? I have friends with autistic boys and it seems to work with them. Makes them take a few seconds and sort of re-set. Best wishes to all of you!

Lisa D in Cali said...

So awesome when you can feel like you made so much progress. I hope the surprise is fabulous! Can't wait to hear (read) all about it!! Hugs

Anonymous said...

Oh I love surprises!! Kevin looks great by by the way. Can't wait to hear what the surpise is! I'm sure Kevin will like it. I hope it has wheels!~! Always in my thoughts, Michelle Long

Liz, SA said...

What a good day! I'm so glad things happened for you, and am amazed at Kevin's progress--and his hair, how long! =-) Hugs to all of you!

Long-time RN said...

Congrats on the accomplishments. Hope you get some quality info from these appointments.

Great photo of Kevin and Pam!

Surprise, huh?? What's up your sleeve now??!!

Jessica said...

Aww, Kevin looks so cute with Pam! I can really see the difference that the surgery has made in his face. I'm thrilled to hear that the Botox is still working well for him.

Glad to hear you're going to get some help with the behavioral issues. I hope you have a productive meeting.

Can't wait to hear about the surprise! I'll be thinking of you all and praying for you. Take care.