I quit today. I found out that the caregiver folks were going to give me 25 hours a week pay originally, but changed their minds and dropped it down to 20 hours.
That's it. I'm done.
I called the doctor tonight and told her that that is the equivalent of paying me for 2.8 hours a day and the VA now needs to pay someone else to come into our home for the other 21.2 hours to supervise Kevin.
Frankly, I love my son and would put in the 153 hours I do (the full week minus the 15 hours that Johnnie's here) for the full 40 hours pay, but I don't feel it's right for the VA to take advantage of people that are doing their job like I am - and for next to nothing!
I know full well how much a facility costs and let me tell you - the full time pay is WAY less than putting Kevin in a facility.
I just don't know what else to do. I am just so fed up of being broke, of being tired, of being sick and of being disrespected.
Understand too that I don't expect to get rich taking care of my son, but I sure shouldn't have to worry about having money to get glasses that are so desperately needed and having the cash to go to the dentist which is also so desperately needed and to be able to get a break and go away once in a while - with or without Kevin. Let's not forget about food and shampoo and haircuts and all those other little goodies.
I am just done. I talked to Kevin about this tonight because he saw me crying the whole way home from the hospital and he was upset. I explained what's going on and he knows that I will not be his full time caregiver any longer.
Mary - can you make sure that someone is at our home on Wed the 20th (the day after we get back from Pittsburgh) at 7am to begin caring for Kevin? I would really appreciate it. We will be at BAMC on Monday for Kevin to have another Botox treatment so I will stop in and talk to you about this then.
First 2 from the Nov kit!
5 years ago