Ok. So although Kevin did very well in surgery, he just won't wake up. I am only allowing myself to believe that it's because he did have a lot of anesthesia as it was a very lengthy surgery with multiple surgical sites.
BUT - in reality - there is a chance it could be because of the expander having to be placed over the shunt tube. There just wasn't anywhere else to put it. I was very happy to hear that the neurosurgeon sat in on the whole entire surgery (4 1/2 hours) and that the tube has actually grooved itself into Kevin's skull, but it still could have put pressure on it that will make it where the CSF can't travel down to his belly. I will know more in the morning as he surely will be awake by then if it's just anesthesia.
I did come home tonight. I wasn't going to - it was very hard to do - but he was so out of it there was no sense me staying and torturing myself. He was a bit combative when he would rouse for 30 seconds or so and both Breezy and I had to leave for a bit when he shoved her away. He didn't realize he was doing it, but it was like deja vu. It was exactly what it was like in the beginning. We both had to step out and just cry for a bit.
But, we are going to end on a good note. Kevin really does look great. His ear is normal shaped now and his eye looks fantastic - and it will look even better once the swelling goes down. I can't see what his neck looks like as it's bandaged and I can guarantee he will be very deformed in the head (one side sunken and the top abnormally large over time), but still...he looks wonderful to me!
So ok, Buddy...it's time to wake up now...
First 2 from the Nov kit!
4 years ago