Wow - I have never seen so many doctors in one day in my life. Kevin had such a busy day and it tired us both out. We still haven't been moved to the 5th floor (rehab) as the docs still haven't cleared him, but hopefully tomorrow. In the meantime, I am just trying to get the lay of the land figured out and also trying to get all of the nurses trained for burns (it's nothing they deal with here). I had Kevin's room turned up to 80 and someone turned it back down to 60 overnight. Yikes! Burn victims can't get cold!
I am also concerned that he hasn't had any PT done since we got here and they don't want his compression clothing put on. I think I need to make a phone call to our burn doc and chat with him about what he needs. And Pam? If you are reading this - give me a call so we can discuss his physical therapy. I knew I should've put you in my suitcase!
I also met a few of the moms here tonight and although I have heard some real miracles, for the most part tonight was a very discouraging night. One woman has been here for 30 months. Her son lost all of the left side of his brain too and he still doesn't speak or anything (but he does make noise!). He has also had 2 cranioplasties done and both had to be removed. And he had 5 shunts removed due to infections. Aaargh! I suppose it's too much to hope that we don't have any of these problems?
I guess we all just need to keep that wish in our thoughts...
Oh - and Holee? There are actually raspberry chocolate chips. I always got them at the Spice Store in East Brady. I suppose a teaspoon of raspberry flavoring would work too. And I always use the Nestle Tollhouse recipe. Yummy!
First 2 from the Nov kit!
5 years ago