Friday, September 26, 2008

Day 118 - Sept 26, 2008

Did I mention that I raised a little shit, lol? I was exercising his right arm tonight and he didn't want me to do it because he wanted to watch a movie. Well, I gave him the little pep talk that I reserve for this ordeal and he shrugged. I said "do you want to walk out of here?" he said 'no'. I said "do you want to play Xbox 360?" he said "no". I said "So what? You want to be crippled when you don't need to be?" and he shook his head yes. I said "well, if that's your attitude then I'm going home". He just looked at me in shock for about 3 seconds and then he burst out laughing. That, of course, made me start laughing because he knows damn well that I am not going anywhere - and he called me on it. I tell ya - he has me wrapped around his little finger. What a punk, huh?

And today Kevin got to ride a bed bike. Well, he tried to anyway. This is basically a set of bike pedals that your body actually lays in bed and you put your legs into. You pedal just like you would normally. Kevin did very well when he did just his left leg and he actually was able to push the pedal down when he had only his right leg in (yay!). Unfortunately though, when we put both legs in at the same time he couldn't stand the pain. I think it was more his hip because it is very mobile when pedaling. I can only assume it's the bone growth, but we will need to look into it further next week.

He also ate mashed potatoes and lime jello for lunch, with powerade to wash it down. I need to go shopping for some different flavors of gatorade. They only have blue here and I want to introduce new flavors to him. And the speech pathologist thinks he might be able to handle the inner part of the pizza as long as there isn't a lot of cheese on it. He is doing very well eating. More and more every day. And we like the fact that he automatically knows not to put more in his mouth until he swallows what he has. His hand/mouth coordination has improved greatly as well. He never misses anymore.

I want to quickly say "thank you" to everyone that defended me here. I really do appreciate it. I sure am lucky to have such great friends, both in real life and online.

That being said, I am going to move on. Although I feel the need to rant sometimes, I just don't have the energy to give it much time. My days are very full, with literally no time to dwell on the drama. This doesn't mean I have decided not to press charges, I am still thinking about that.

So to answer a question or two...Jocelyn, you asked about pornography showing up on my blog? I have no idea why that would be, but I can guess that you have a virus or some sort of application running on your computer. I have asked a few people if they see anything like that and to my knowledge - no one else does. If other people do, please let me know.

As to Jessica commenting about me never taking a break - you are pretty much right. I just can't. Even on the days that I go somewhere for dinner or the days we went to the beach and the casino - I was still in the hospital at least 12 hours. Many times it's closer to 16 hours. If I do leave, I try to always have Breezy here, otherwise the sitter needs to be in the room and personally, it would drive me nuts to have a stranger staring at me for any length of time. I would rather have my mom and sis any day and it's all about what Kevin would want.

I did go and buy Kevin a new laptop as his was in Afghanistan with him and I won't bring the germs into his room. So we now have the internet through the day and I can get the blog done earlier sometimes (depending on Kevin's mood) and I am just now trying to clean up my inbox. An impossible feat, I tell ya! But this means that I have more time to sleep now - which is always a great thing (grin)

Debbie - I don't know what kind of soft foods Kevin likes. It's sad to say, but his tastes have changed since joining the Army. I know he liked that "easy mac & cheese" stuff from Kraft and pudding of course. I really just don't know what's out there and I need to go to the store to scope the situation out. If anyone has any ideas - throw them at me. Anything soft or even going into the medium soft stage.

Sherri - I know you are retired now - so hop on a plane and visit! I would love to have ya' (and anyone else that is close enough)

Which reminds me - to the person who's daughter is at USF - stop in next time you are down and to Mary Ann - the same goes for you. Stop by in Feb when you are here visiting your daughter in Clearwater again.

Heck - we'll just have one great big party! LOL!

18 comments:

Anonymous said...

Hi Leslie
What about some kind of pasta's, if you overcook it it can get pretty soft, you can get the baby shells that are pretty little. I used to feed them to my toddlers. Also there are some great toddler foods at the grocery store that when warmed up aren't that bad. My sister recently broke her jaw and we found that as long as we didn't tell her she was eating "baby food" she just thought we found some different stuff for her. Anything to get them to eat right!
I read your blog daily and like all the others that comment before me you and your daughter are AMAZING.
To Breezy, I truly believe that there is nothing stronger other than a parents bond with their child than that of siblings, you have given up your life to be with your brother and I am sure that he recognizes the sacrifices both you and your mom do without a second thought. Stay strong both of you and as hard as it is try to take some time for yourselves as well
Shannon

Unknown said...

Les, I can just picture Kev doing that! And yes you are absolutely right-He does have you both wrapped around his finger but that's okay because what true family member wouldn't be? I just gotta say that my heart is filled with joy knowing the progress Kevin has made thus far. I think back to the first night you called and told me what happened and it's just truly amazing how far he's come. He really is a miracle at work Les. Someday, I am gonna make it down there and join your one big party! Hell, I'd even cook you turkey, stuffing and the like even though it wouldn't taste as good as you make it but I'd sure try. Hope you got a chance to read my comment from the day before. Sorry I ranted but I feel better now. I almost emailed them again but I thought, why waste my time on their sorry asses! As you have said, you moved on and are dealing with the VERY IMPORTANT issue at hand and that's Kevin and Breezy. BUT...I'd still press charges on them-Plagiarism is a very big deal and you can't let anyone get away with that! Think hard Les. I know that Kevin is your main concern but sticking a boot in their ass for what they did does not need to be left undone! Hope to read more good news tomorrow. Love you all! HAve a great weekend
Diana

Anonymous said...

so do I understand that Kevin says more than just "hi"? That he also says no? Are there other words he says. This is wonderful news! I am amazed at how fast it seems that he is remembering.

Vicki Chrisman said...

Well, I wish I lived closer.. so I could come visit.
And Porn? I havent seen anything like that, I and come here everyday.
Glad Kevin is doing so well. New things everyday! He is just taking huge strides!
See,..sometimes being stubborn pays off!!! lol

Anonymous said...

Leslie, Breezy, and Kevin
Hi! My name is Jen and I live in Petrolia. I don't think we know each other...but...I just wanted to let you know that I have been reading your blogs since this all started and I just have to tell you guys that I think you are absolutely GREAT!!! I have been enthralled by your site and read it every day. I have laughed with you and I have cried with you. When I first started reading...I was so saddened by what you all were going through. Now when I read it...I just can't wait to see what Kevin has done today!! His progress has been nothing short of a miracle and I pray for you all every day. Keep up the great progress and know that there are people here back home that think about you often. Take care!!!
Jen

Anonymous said...

Leslie and Breezy, just keep doing what you have been doing. Negative people - you are not welcome here! Kevin has come so far because of you Leslie and Breezy! I truly believe that without that constant support you give he would not have come this far so quickly! Since he woke up Kev has been steady improvements that are absolutely amazing! I read daily and post rarely,but you all three are in my thoughts and prayers always. Kevin, I thank you for your tremendous sacrifice for our country, and Leslie and Breezy I thank you guys for your tremendous sacrifices for Kevin. We all should be so brave as you all. Anytime you need protecting or defending you should know that most of us will just jump at the chance to do it! It's an honor! I do think charges should be pressed, but that is something you will have will decide. Stay strong! Kevin, we are all await a new video of you singing! Leslie you are the proverbial momma bear protecting your cubs. Breezy you amaze me beyond words. MMMMMM. pizza hut stuffed crust is my favorite!

Anonymous said...

Just a thought, I know how much everyone loves Chinese food in the family, Im sure Kev would like some Lo-Mein or Fried Rice or maybe some sweet and sour chicken maybe if you left it get really soft? Stay strong, always in my thoughts....

Sara Forbes

Anonymous said...

I guess I have a mystery on my hands.
I've never been to a porn site so I guess I'd better check with Google and my Comcast.

Kevin is quite a guy! It is so neat that he likes to pull your chain.

Once again, you are an inspiration to all mothers.

Jocelyn

Unknown said...

Hi Leslie,

WOW..I'm so proud of Kevin..He's really doing great..Every day brings him a little closer..

I've got the domino's taken care of, but I wanted to ask you if you think you like some large scrabble squares or playing cards that are color coded for easier viewing ???

If you're wondering where i'm coming up with these ideas ..my mother had low visual problems and then had a stroke..These are what I used to help her..If you have any ideas or questions just e-mail me and I'll give you my phone number..

Since Kevin is shooting basket balls, i wonder if either the foam or plastic horse shoes that we use you'd be interested in ??

Take care..
Brenda

Anonymous said...

Good morning!

I get my coffee each morning and read your blog first thing. I so look forward to it (especially now that Kevin is doing SO much better) that I don't allow myself to read it until the following morning. I make myself wait; probably sounds dumb, but there you go. I am getting so encouraged that some mornings I just grin to myself while reading your blog!

As far as food suggestions, I would think that foods that create different sensations on the tongue (salty, sour, sweet) and different textures would be good to try. Also, cold (ice cream) and warm. I know you are limited right now, and perhaps you have already tried a lot of what I suggested, but maybe you can look for a variety of healthy things that are soft enough for your growing boy yet give him "pause" - might make his meal times more interesting for both of you.

I love the lap top in the room idea. I bet soon he will be hogging it and you will have to go get another one for yourself!

Hugs,

Cathy M

Anonymous said...

Leslie,
I follow your blog daily, I usually don't post comments much. I am glad that Kevin seems to be getting stronger each and every day. It seems that he is becoming more and more active. His calorie intake should also increase. Which means more foods. Might I suggest the following: soft scrambled eggs with cheese, graham crackers with milk, shepherds pie, McDonalds cheese burger without the pickles, banquet salisbury steak, a jello poke cake. I work as a dietary cook in a nursing home and Hormell makes meat, vegetables and pastas for puree diets. I know that if the food doesn't look appealing he might not want to eat it. I would also suggest maybe some cream soups fortified with butter and milk or cream for extra calories.

A while ago you had mentioned some songs that Kevin seemed to be humming along. Well I figured it out. GUITAR HERO 1 songs. My daughter is around the same age as Kevin and was playing one day. I told her about Smoke on the water and she played it and dedicated it to Kevin.

I also believe this is your blog and any negative (anonymous)comments are a disgrace. This site should be used for positive encouragement and usefull advise for you, Kevin and Breezy.

Now that Kevin is speaking, eating, laughing, moving his right side more I truley believe that he will be standing and maybe even taking steps (walking) before the end of October. These past 4 months he has come a long way, and God is showing that miracles can and will happen.

"STRONG and AMAZING" are very descriptive qualities of you, Breezy and Kevin. Keep up the good work of the bond that ties all of you as a family.

God bless,

Suzanne from Adrian, Pa.

Lil Tinker said...

Hi Leslie,
I have read your blog from the first day you blogged about Kevin's injuries to the current day. I cry for all of you and I laugh with all of you. I have posted before to offer encouragement. I am a soldier's wife. I am a soldier's daughter and in less than two years I will be a soldier's mother.
I feel so many emotions for you but I have never felt rage until I read what I did about Tim and Beth. I have a son with special needs, life long epilepsy and learning difficulties and I have told more than a few to go to hell over the course of his lifetime. Not because I am an ugly person but because I am a MOTHER. I would say that you used great restraint when dealing with the two of them and I am with you...forgivness???? For what? Being an absent parent and a glory hound at the expense of your own son's injuries? I would ask your anonymous poster just when do you stop turning the other cheek? We only have two and right now, for all intents and purposes, you are Kevin's sanctuary and protector. That man was willing to die for me and millions of others and it appals me that in order to gain a little sympathy and spotlight for themselves, two people who should be on a mission to protect and love are instead on a mission for selfish fame. SHAME on them and SHAME on anyone else that supports them. They didn't make a mistake or accidentally step on toes. They lied and they stole from you. They stole your words, your feelings, your sorrow, and your triumphs and for all of the wrong reasons. I am so sorry that happened. I am also sorry that this has turned into a long drawn out post from a virtual stranger. I am a mother before I am anything else and I lived in an ICU for peds unit for 3 years with a child that couldn't fight for himself and I did it not for fame or for recognition or sympathy but because there wasn't another option for me...I am his mother. So from one mother to another, you RAWK the house and you are a very special lady. If we can do anything for you, please let me know I am not hard to find and my email is irishtimebomb@yahoo.com.

On a side note, I would like to make Kevin a 'no sew' blanket and send it if you think it would be allowed in for him. I make them out of soft fleece and I can get Army material or I can get a plain color if you would rather. Just let me know and I will get it done and in the mail to you. Maybe Breezy would like one too since she is his 'baby sister' :)

With respect and gratitude,
Liz Hall

Anonymous said...

Hey Leslie and Breezy,

You know what I love? Your relationship with Kevin. It comes through loud and clear that you love each other deeply yet can razz each other too. Kevin is a lucky guy to have you by his side. I know that is where he wants you to be.....such a fantastic support. All your comments have been so personal, and the fact that you've allowed so many people to share in them, shows everyone your giving spirit and gentle heart. I think it has given many people much to think about. We all can learn a lesson here. So, thanks for all your sharing..I'll keep reading and praying.
A 173rd Mom
Anita

Holee said...

Key lime pie, manicotti, ravioli, mashed banana, omletts, pancakes, buttered bread dipped in soup broth, bread dipped in gravy or gravy & bisquits.

If you buy a potato ricer you can put a lot of foods through it, noodles, veggies, fruits, soups, pastas.

Before there was baby food, mother's fed toddles "pap". That is any warm liquid that you can dip foods into like crackers, breads,muffins,jelly toast, cinnamon toast, etc. There is always the old standby..apple sauce!

Jan said...

It's my daughter who is at USF and you darn well better believe I'll stop in given the chance! However I don't expect to be there often and hopefully you and Kevin will be loooong gone next time I'm down that way. Or maybe I'm overly optimistic. :)

Leslie, I write and send packages to many soldiers overseas. If it's okay with you, I'd like to include a card saying "in honor of Kevin Kammerdiener" (or something like that) in each package. If that's a problem just let me know! There's nothing I can DO for Kevin but I do want to make sure he is remembered until he can get back into the world and make some noise on his own.

Anonymous said...

Leslie, Hi, I wanted to tell you that I saw Matt last night and he played his phone message of Kevin saying "Hi" for me and it was GREAT to hear! Also thank you for the phone call it really meant alot to me you guys are special and I pray for you all everyday and I can't wait to read and see what new things Kevin is doing you are a great mom and breezy is a great sister. I lost your email address (imagine that lol) here is mine lhogan54@hotmail.com if there is anything I can do let me know please. Love you all Laura

Anonymous said...

Leslie,
Just another thought, growing up with Kev and Breez, my FAVORITE and I know it was a big hit with all three of us was....your fried bread (elephant ears) with syrup and/or powder sugar. I can remember sitting there eating them with everyone, including Anna Sita. I was wondering if you had any way to cook and get those to him. Or if he really wants pizza, I know its not the same, but, like the frozen pizza bites or like a hot pocket? Also, I know its considered baby food, but they make stuff called "fruit puffs" they make banana and cherry flavored i think, they are like cereal, but become soft after putting them in your mouth. But, they are very good. Hope maybe some of this will help, or bring some more new ideas.

Love you call, always in my thoughts,
Sara

Anonymous said...

Hi Leslie,

You are my hero. Our family has an Army Ranger and a Marine currently in service to our nation. I feel for all that you are going through. We are so proud of our men in uniform and I am so pleased that Kevin is getting all the care he so rightly deserves.

I wanted to give you some insight to your comment about Kevin only saying one word. My husband and I cared for his mother after a stroke left her without the ability to speak. We could tell from her expressions and hand motions that she understood most everything. She first began to say the word "one". Entire sentences made up of different inflections of that one word. It was amazing how well we could understand her wishes by simply repeating what we thought she was saying and having her afirm it. After about two weeks she adding the word "well" to her vocabulary. Again entire sentences using those two words. She would get an expression of deep concentration as she searched she mind for each word and would get a look of "there it is" and still only "one" or "Well" came out. I'm sure that she would have increased her vocabulary over time if another stroke hadn't taken her at the age of 87. So stay with what you are doing. The brain has amazing ability to rewire itself.

Please remember to take a break, the constant search for an idea for a breakthrough can be so exhausting. Sometimes you need to allow Kevin to give you some time off. He realizes what your doing for him. Don't deny him the pleasure of doing what he can to thank you when he gives you permisson to leave.

You and Breezy are angels on earth. Thank you for allowing me to follow your progress.

Michele