Another great day! Today Kevin drank about 2 ounces of Powerade. It was so funny because Breezy poured it into a cup and I was going to use the spoon to give him sips and he pushed it away at first. I was surprised, but then he reached his arm out and grabbed the bottle from Breezy and brought it to his lips to take his own drink! I had to grab it real fast so that he didn't pour it down his throat - he is just not steady enough or ready enough to drink that much that fast. Oh - and then when I talked to the speech pathologist about something, Kevin tapped my arm and made the motion to 'come here' using his hands - meaning give me more right now! I was trying so hard not to laugh! But seriously, he was so upset when we had to call a halt to his drinking it. We didn't want to give him too much yet because we weren't sure how well he would tolerate it. I can happily say that there were no problems and believe it or not, his tongue is still blue almost 9 hours later, lol.
And guess what tomorrow brings? Applesauce! I can't wait!! (and to the person who works SP - the pathologist is always there when we do these things. I would never risk my son by doing something he is not ready to do - and I am not knowledgeable enough to know when he is fully ready for these changes)
Another great thing was that he was doing physical therapy and the nurse told him to do 5 leg lifts and he did five and only five on his own. Meaning, she didn't count to five - he did it himself. I guess he can still count, huh?
And I do believe his trach is coming out tomorrow. Yay!! Neurosurgery finally gave the ok, so respiratory will come up at some point and remove it. I am so looking forward to that!
That pretty much sums up our day. I guess Tim is coming tomorrow. I had to give authorization for the Army to pay for his flight and his lodging as I am Kevin's NMA (non-medical attendant). I am second guessing my decision because I am worried about Kevin having a setback. I wish Tim would think about how hard this would have to be on Kevin due to the fact that he can't voice his thoughts or emotions. It's just not really the right time. It's been frustrating enough for Kev and now this. If Tim would just realize what Breezy is feeling, he might understand how detrimental this trip could be to Kevin. I just don't understand why he thinks everyone wants to welcome him back with open arms. I thought he 'got it' when I told him last time exactly how devastating his abandonment was through the years for both his kids. But I guess some people just don't care about what others feel or want.
Oh well, I did allow him to come just in case Kevin wants him here, but I will be keeping a close eye on the situation. Nobody, and I mean NOBODY, is going to mentally or physically harm either of my kids if I can help it ever again. And this time - I am stronger. I am bitchier. And I can help it.
Phew! That felt good!
But, to end on a positive note - Kevin really did have another spectacular day!
And I will get to everyone's questions tomorrow. I have written enough for tonight, lol.
First 2 from the Nov kit!
4 years ago