Thursday, March 26, 2009

Day 299 - Mar 26, 2009

It turns out that Kevin has BPV - or vertigo in more simpler terms. We finally were able to see the ear specialist and they pulled out so much dried blood, puss and wax that Breezy was appalled. (I have been trying not to go in this week so I missed this appt too.) Anyway, they did find that he has vertigo and it could be months before it goes away.

We are still going to have an eye appt, even though the vertigo is probably the cause of his blurry vision, and it is scheduled for Sat afternoon. (sorry Diane - gotta pick you up at the airport and bail on you for a while).

We have also decided to go back to Texas for his neck surgery. We may have his eyes done there too - not sure yet. I have already asked the powers that be to start planning this as the surgery really needs done soon. Kevin really can't hold his head upright because the skin is so pulled on his chin/neck. It also makes it very hard for him to eat and he drools constantly because his lower lip is pulled down so far.

And after some consideration into the right plastic surgeon (thanks for the emails from everyone with their suggestions) I have decided to go with Operation Mend out of UCLA. This is an organization that works with wounded soldiers. I am not sure when that will happen, but I would think it will be a little while yet.

And to Holee and everyone else that asked - yes - the Botox is working wonderfully! Kevin's arm has been so relaxed and his hand is even open most of the time. OT has been able to really do some work with it and even Kevin is excited about it. Tonight he had Breezy and I hook up his XBox. He gave it his best shot, but you really need two hands to play it. It did bum him out, but we got him busy with something else.

And anonymous asked if we are leaving the hospital to an outpatient status and the answer is yes. We are rarely there now - only for therapies truthfully - so I see no reason to keep him in. He always hates having to go back every day and I have seen him come so far since staying at my parents' apartment. So now I need to find us a place to live until the house is a done deal. I am hoping there is something at this complex so we only have to move into a different apartment here. I will find out tomorrow, hopefully.

Kris - you asked about Alan and from what I know I believe he is doing well. I haven't mentioned it, but Breezy and Alan split up a few weeks ago. I wish him the best as he is a good kid, they just weren't right for each other, I guess.

And now I am heading to bed. Tomorrow's Friday - yay! We love the weekends!!


Alison said...

It's good to hear that Kevin just has a problem with vertigo (not good that he has the problem or that his ears were allowed to get that bad, just that it's not something more serious) and maybe now he won't need to listen to his music quite so loud, huh? What with the clean ears and all. ;D

UCLA has a great medical program so I'm really hoping that it's a good fit for Kevin and that things will go well, same with the surgeries in Texas - that they happen soon, too!

Yay for the Botox treatment helping his hand!! That is such great news to hear. Hope you are feeling better yourself.

Jodi said...

Hi Les,

Sounds like you are feeling better...are you?

Also sounds like things are finally rolling and happening for you guys. Great news on the Botox. Glad you finally found out about the vertigo. Now maybe he will feel even better each day.

Do you know when you are going back to Texas for surgery?

Love the picture of Kevin on his skateboard!! Thanks for posting it!

Thinking about all of you.....

Healing and positive thoughts for Kevin.
Strength and comfort for Leslie and Breezy.
Safe thoughts for all military personnel and strength for their families.
Andrew's Aunt Jodi

Anonymous said...

You are ready for a Parabay right now lol

Jessica said...

Vertigo is no fun at all, so I feel for Kevin. It doesn't help either, if you can't hold your head up straight, so that will be really good to get his surgeries done soon.

I'm thrilled to see the Botox is doing its job! It won't be long before he's beating everyone at the xbox games, I'm sure.

I'm thinking of you all and praying for you, that you'll find a good place to live until you can get in the house.