It turns out that Kevin has BPV - or vertigo in more simpler terms. We finally were able to see the ear specialist and they pulled out so much dried blood, puss and wax that Breezy was appalled. (I have been trying not to go in this week so I missed this appt too.) Anyway, they did find that he has vertigo and it could be months before it goes away.
We are still going to have an eye appt, even though the vertigo is probably the cause of his blurry vision, and it is scheduled for Sat afternoon. (sorry Diane - gotta pick you up at the airport and bail on you for a while).
We have also decided to go back to Texas for his neck surgery. We may have his eyes done there too - not sure yet. I have already asked the powers that be to start planning this as the surgery really needs done soon. Kevin really can't hold his head upright because the skin is so pulled on his chin/neck. It also makes it very hard for him to eat and he drools constantly because his lower lip is pulled down so far.
And after some consideration into the right plastic surgeon (thanks for the emails from everyone with their suggestions) I have decided to go with Operation Mend out of UCLA. This is an organization that works with wounded soldiers. I am not sure when that will happen, but I would think it will be a little while yet.
And to Holee and everyone else that asked - yes - the Botox is working wonderfully! Kevin's arm has been so relaxed and his hand is even open most of the time. OT has been able to really do some work with it and even Kevin is excited about it. Tonight he had Breezy and I hook up his XBox. He gave it his best shot, but you really need two hands to play it. It did bum him out, but we got him busy with something else.
And anonymous asked if we are leaving the hospital to an outpatient status and the answer is yes. We are rarely there now - only for therapies truthfully - so I see no reason to keep him in. He always hates having to go back every day and I have seen him come so far since staying at my parents' apartment. So now I need to find us a place to live until the house is a done deal. I am hoping there is something at this complex so we only have to move into a different apartment here. I will find out tomorrow, hopefully.
Kris - you asked about Alan and from what I know I believe he is doing well. I haven't mentioned it, but Breezy and Alan split up a few weeks ago. I wish him the best as he is a good kid, they just weren't right for each other, I guess.
And now I am heading to bed. Tomorrow's Friday - yay! We love the weekends!!
First 2 from the Nov kit!
4 years ago