We put in for vacation today, lol. Yep - I told the doctors that we won't be in next week. Kevin is getting more and more disgusted and frustrated by everything at the hospital and frankly - I don't blame him. He is back to being sad and when I discussed us taking some time off from the hospital his eyes just lit up and he was nodding his head so hard I just had to laugh. So, that's what we are doing. We ran some tests today (CT and other scans) to make sure he is ok to take time away and I think all will be fine. Truthfully, I think we both need the break.
We also worked on something today. We decided to go to the apartment again tonight and he and I worked on him getting out of his chair and into a normal car seat. I think we are going to need the van for quite some time, but it's not something we will always need to use. He had no problems whatsoever getting into the passenger side and tomorrow we are going to actually go for a ride and see if he can handle it. We just don't know if he will get motion sickness riding up front or not.
And I want to answer a question that I received in a comment. Kathy M asked about Kevin's head being more rounded when swollen because she thinks it looks rounded now. If you go and click on the picture of Kevin sitting on the stairs (the close-up) and you look right above his ear - you will notice that it is very sunken in right there, almost an inch deep. It's not swollen anymore at all and that's what makes it even more pronounced.
As to what the Botox will do - hopefully it will loosen the muscles so he isn't so spasmodic. His arm is in a constant spasm and they are hoping it will release enough to be able to be stretched and straightened. They tell me that he may need to have treatments more than once and I sure hope not. It must have been pretty painful because he cried during the shots.
And now I need to get signed off. The electric went off a while ago and I have been working from battery back-up and it's nearly done. (btw - that was a totally dumb comment - I'm sure the rest of you realized that if there's no electric, then there's no cable and if there's no cable, there's no internet and that means there's no posting - duh!).
Needless to say - the electric is back on now, but I am still doing to sign off, lol.
First 2 from the Nov kit!
4 years ago