Thursday, March 19, 2009

Day 292 - Mar 19, 2009

We put in for vacation today, lol. Yep - I told the doctors that we won't be in next week. Kevin is getting more and more disgusted and frustrated by everything at the hospital and frankly - I don't blame him. He is back to being sad and when I discussed us taking some time off from the hospital his eyes just lit up and he was nodding his head so hard I just had to laugh. So, that's what we are doing. We ran some tests today (CT and other scans) to make sure he is ok to take time away and I think all will be fine. Truthfully, I think we both need the break.

We also worked on something today. We decided to go to the apartment again tonight and he and I worked on him getting out of his chair and into a normal car seat. I think we are going to need the van for quite some time, but it's not something we will always need to use. He had no problems whatsoever getting into the passenger side and tomorrow we are going to actually go for a ride and see if he can handle it. We just don't know if he will get motion sickness riding up front or not.

And I want to answer a question that I received in a comment. Kathy M asked about Kevin's head being more rounded when swollen because she thinks it looks rounded now. If you go and click on the picture of Kevin sitting on the stairs (the close-up) and you look right above his ear - you will notice that it is very sunken in right there, almost an inch deep. It's not swollen anymore at all and that's what makes it even more pronounced.

As to what the Botox will do - hopefully it will loosen the muscles so he isn't so spasmodic. His arm is in a constant spasm and they are hoping it will release enough to be able to be stretched and straightened. They tell me that he may need to have treatments more than once and I sure hope not. It must have been pretty painful because he cried during the shots.

And now I need to get signed off. The electric went off a while ago and I have been working from battery back-up and it's nearly done. (btw - that was a totally dumb comment - I'm sure the rest of you realized that if there's no electric, then there's no cable and if there's no cable, there's no internet and that means there's no posting - duh!).

Needless to say - the electric is back on now, but I am still doing to sign off, lol.

5 comments:

Jodi said...

Good for you two! Enjoy your time away from the hospital, get some rest, and don't worry, everything will be fine!! I am proud of both of you for taking this step. 1 week closer to permanent freedom!! :-)

I hope you have a great Friday!!

How is Breezy doing?????

Healing and positive thoughts for Kevin.
Strength and comfort for Leslie and Breezy.
Safe thoughts for all military personnel and strength for their families.
BIG HUGS AND ALL MY LOVE TO ALL OF YOU!!!!!!!!!!!!
Andrew's Aunt Jodi

Kathi said...

My 6 yr. old granddaughter who has cerebral palsy has been getting Botox in her leg muscles for several years now. It does loosen up the muscles and reduce spasticity but she has to have it on a regular basis. The first few times she got it, it was done in doctor's office but now she gets it at the hospital...takes 20 min. They give her Versed and then some kind of an anesthesia that must not be very much because she is alert and awake within a short time. It was very traumatic & surely it must have been painful when done in doctor's office for all concerned. Maybe you can see about this method for Kevin.

Kris said...

Good for you Leslie! It's hard to imagine how bad you both must need that time away. Enjoy your time away, it will be easier to enjoy each other too!

God bless you Leslie, Kevin & Breezy. Thoughts, prayers, support and loads and loads of extra special angel hugs come your way every single day.

- Kris, a Soldiers' Angel from RI

Long-time RN said...

Enjoy the break! Hope Kevin's spirits pick up during this time. Kick back and relax.

Jessica said...

How great that Kevin can take a break from the hospital for a while. It sounds like he needs one. I hope the Botox really helps his arm but wish it didn't have to hurt so much.

I'll be thinking of you all and pray that Kevin's vacation from the hospital lifts his spirits! Take care.