I think I should have started last night's post with a comment about my tone of voice not being one of anger or snarkiness, but rather just defeat and sadness.
I also should have made it aware that it was in private emails that some (yes more than one) questioned my financial integrity and it was only to them that I based part of the post to. The comments were what I was answering when mentioning about why I can't get a job.
I do know that most everyone that reads this blog understands what I am really like and I do think that most have our best interests at heart. I also think that I have made a mistake maybe in not telling y'all how crappy this lifestyle really is. I just can't focus on how bad it is though - it's the only way to get through all the horrible parts; by pretending that all is well and good.
So anyway, just forget I said anything. I just don't have time to focus on people that I just can't relate to. And to those that feel I am just out blowing money left and right on a high end lifestyle - well...the little smiley with the tongue sticking out is virtually inserted here. I also seriously hope that those folks never go through anything like this as a severe reality check will be blowing up in their faces.
We had 'the good aide' today. Her name is Trisha and Kevin did really well with her again. (Patricia - she can only come on Tues and Thurs so yesterday's aide was a once in a lifetime person).
He also had OT and PT today and did great for both of them. For PT he actually rode the stationary bike for a full 5 minutes. This is in the hopes that he will eventually be ready to go for a bike ride with me. Here is a photo:
And this one if of Kevin using the pulleys. He still doesn't really feel that right arm (proven when they took donor skin from that arm for the last surgery and he didn't even know it until I pointed it out - days later. And supposedly donor sites are more painful that burn sites)
And now I am going to sign off. Tracy and her husband Jody came down from PA to help me do a few things. Stuff like unpack and get the van fixed, get the car fixed, build things, fix things - basically all of the things that I just don't have time to do. Tracy has even opened all of the mail (the stack is about 3 feet high) so that I can eliminate a step in trying to get it cleaned up. Man though - she is a task driver, lol! I don't know who is worse - her or Kevin, hehe.
Oh and remind me to mention the new brain doctor tomorrow. I am really excited about him!
First 2 from the Nov kit!
6 years ago