Another fine day! Same as yesterday pretty much, but the neurosurgeon drained another 180 CCs of fluid from Kevin's head (they did not put a shunt in as Kev's skin is not healthy enough yet). That's a whole lot of fluid in a 2 day time span and it looks like they are going to put a drain in tomorrow possibly. I think this is giving y'all a good idea of exactly how large Kevin's head is. It is still very big, but removing that much fluid has reduced the size.
This is going to be one very short post as I just want to lay down and watch a movie tonight.
Before I go though, I want to quickly tell Andrew's family (Wendy, Jon, Carol, Stan, Judie and Jodi) that I will call as soon as I can. I have been trying to call Jodi for almost 2 weeks and it's so embarrassing to say that there just hasn't been time (other than late at night and I won't call then). I think of all of you every day and can only wish that we get to meet someday in the future. And Jodi? Thanks for sending me pictures of Andrew. He was so incredibly handsome. This is just such a sad thing...all of it.
I also want to thank everyone for all of the cards and gifts. It is amazing how supportive this country is of it's soldiers. We have read every letter and card and kept every single thing for Kev to see when he is well enough and it appears we are going to need a giant sized U-Haul when we move to Florida, lol.
I will end with 2 little funnies of Kev from today. I have been told by the docs that he may never surpass a 3 or 4 year old level. Well there have been quite a few times where his hand somehow came loose from it's restraint. Well I busted him tonight! I caught him putting his arm straight up from the elbow and shaking his arm in a circular motion to have the restraint fall down his arm to his elbow. This enables him to move freely as he can lift his arm completely then. Does this sound like something a toddler would do? Heck no!
And last, Kev is very determined to scratch a certain graft area. I know it bothers him, but we just can't allow it. So when I told him NO and pushed his hand away - he put his hand up to my shoulder and pushed me. Hard! He was mad that I didn't allow him to do it. And he actually pushed me away from him twice tonight. I had to turn away so he wouldn't see me grin.
Isn't this awesome?!
First 2 from the Nov kit!
5 years ago