Friday, July 25, 2008

Day 55 - July 25, 2008

Well, the PEG didn't get put in. Apparently, they tried to do it at the bedside but Kev has too much scar tissue and he is too thin (he's probably lost about 25 lbs - weight he really didn't have to lose because he was already thin) so they are going to have to do it next week in the operating room. I guess they have better equipment there.

Kev also somehow managed to get his hand loose again and pulled out his trach, his feeding tube and his dressings from his head this morning. This scares me because he just keeps getting loose and he is a danger to himself at this point. I just wish that the nurses could figure out a way to keep him restrained. They really are calling him Houdini now because he manages to get out of every restraint. I just can't wait to get to Tampa. I know they are better prepared for a situation such as this.

I have to say one thing - this is all so very exhausting. I really am just so tired. Physically and mentally. But I guess that's just too bad. I don't believe there are things like 'days off' when dealing with life so I better just suck it up and smile, right? Right.

14 comments:

Vicki Chrisman said...

Oh Les... I wish you did not have to deal with all this .. or that Kevin , or Breezy didnt either. It's just not fair. You have all been so strong through all of this.. I dont know how you are doing it. I wish there was more the rest of us could do to help.

Anonymous said...

Thats are Kevin always being a trouble maker lol. We love to hear that he has the fight still in him,and sad to hear that he has to go to the OR for his peg but he is a tough kid and just remember stuburn like his mother and sister.

love you all hugs and kisses
Aunt Dawn Uncle Harry, Scott, Greg, and Hope

Kay said...

Oh, honey. I wish I could help. Hang in there, sweet Leslie.

The Rock said...

Dear Leslie
What a fighter ! I am so happy to hear that he is trying to get out of his restrains . It shows how bad he fights for his life.
He might be a little stronger next week .
I hope they find a way to restrain him where he can't get out.
You are in my prayers Leslie and Kevin and Breezy 2.
God bless all of you
Love
Petra " The Rock"
Soldiers Angel from
Louisiana

Gretchen said...

Chin up, Les! Just keep the strides that Kevin has made in mind - YOU being there for him is such an enormous part of that. You can do it, just keep on keeping on. I know it's hard and painful, but you're tough and you always do what you have to do. That's one of those qualities that makes you such a wondeful person and a GREAT mother!! *HUGS* Love you!

Anonymous said...

Les, Just share all your thoughts with us and let us try to help. You are so strong honey I sure do admire you. Once again you are also my HERO. I am praying for you strenght as well as Kevin. He is one strong young man. Love ya, Pam

Anonymous said...

You have every right to take care of yourself. If you become weary and or sick. You will not be able to make clear decsions. Please take sometime for yourself however it will work for you. You may even want to go home for awhile. You need some normal life (whatever that may be). We are all human. You have been very brave being with Kevin. I'm sure you probably won't hear to this suggestion. but it is ok to say I can't take it anymore. Stay strong.

Anonymous said...

Smile Sweetie HE IS HERE and not going anywhere. I know it has to be so tuff, but, you have him and he is making amazing stides. BREATHE we are all with you in thought and most of all PRAYER

Anonymous said...

That has to be tough for you to watch...knowing he should be restrained (yet wishing he didn't have to be) and then watching as he is able to free himself even though he shouldn't. No wonder you are tired.

I agree with others, though, that it does show how much fight Kevin has in him. He is strong. This is good.

I hope you take some time to rest and relax. You need to take care of yourself!
Thinking of you every day!
Megan Slaugenhoup

Anonymous said...

when i was with the herd in vietnam there were days when i felt that i couldn't go another step. i'd be so tired, so scared, afraid i'd do something wrong. then i'd be reminded of my drive-on rag (a towel or a bandana worn around the neck to wipe the sweat). at times like that there was no praying, no whining, it was just "wipe the sweat, put down your head and drive on!

leslie, you're going to get through this shit. things might get worse before they get better, but you're gonna make it and so is kev. so take it as it comes, put your head down and drive on!

don't ever forget...kevin is a sky soldier and you are a sky soldier's mother.

AIRBORNE!

Anonymous said...

How very true. So many times in life we have to wipe the sweat, put our heads down and drive on. I know you have the strength to do it. You have already shown so many people what a real Mom is all about. I'll be praying for much, much added strength for you, for Breezy and most of all for Kevin. Try to grab a little rest when you can. Stay strong. As always we continue to pray for all three of you. Fight on Kevin!!!!!

Holee said...

Leslie,
Mom's do suck it up and keep going. Everything will be alright because Mom's don't let things be wrong. Even when our children are bad or even gone like my son, to a Mom her child is okay, loved and even when gone, they still smile in your heart every minute.

This post was not the usual you. You are tired, depressed. Your living in a motel situation, it's not yours, it's not home. But another smile is coming and when it does come, it will wipe away all that is not right. I think you need a hug from Breezy, and that too is coming soon.

I want you to have that turkey dinner with mashed potatoes..I think everyone here would love to bring it to you..but that too is coming when you make your way to Fl. I hope you don't have to suck it up for too much longer, I think a visit in Fl. will do you a lot of good.

Anonymous said...

You are so strong I just heard about your son and got this site. I began to read and could not stop. I am so sorry to hear about himand pray he will be better one day He seems to be a strong man and we need more people like him in our world. Good Luck to you and Kevin. He will be in my prayers and thoughts from this day forward and will continue to read this site daily.

Anonymous said...

Hang in there! I hope you can get some well-deserved rest. Listen to your body and try to take care of yourself, although I know that's the last thing on your mind. I'm praying for you and your kids.