We had a good day today. We just basically stayed home and visited with my mom and dad. I did spend a few hours on the phone with various medical people and a good bit of that was with the folks up at UPMC in Pittsburgh. It looks like we will be going up to Pittsburgh somewhere around March 14th for Kevin's initial screening. That visit will be for 4 days and then we go back up at the end of April for the actual procedure. That visit will be 2-3 weeks and it looks like we will be there through Easter. Kevin is very excited about this and I am still keeping my fingers crossed that he will be able to take part in it.
One really great thing that happened just a little bit ago is that Kevin told me his head isn't hurting as much as it used to. I can only guess that it's the acupuncture? He says that his head is always painful, but that it only hurts a little now. Wouldn't it just be so wonderful if ALL of his pain went away? Oh, I so hope that happens!
I am going to touch on just a few comments as I am waaaaayyyy behind:
Judy - it was great seeing you and thanks for explaining who Dorothy Lorigan was. Dan - I had no idea, lol. It's such a small world though, huh?
Hallie - I wish you and I could get together and just get a good drunk on. Of course, we'd probably both just be blubbering and bawling, lamenting about how life really does suck. I am so sorry about your new car too. Hope your husband is doing well. BTW, how did the stem cell eval go?
Miss Em - I haven't sat down with Kevin in any artistic fashion in a long time. I will have to get back to it. Thanks for reminding me!
Lisa D in Cali - I just finally got around to looking at the new Tony Hawk Shred game. That just might work and Kevin just might like it! I am so glad they have it for the Xbox. I will look for it next week while he is in the hospital. Moe - remind me, please (you know how dumb I am anymore, lol)
Mark (arctic rec0n) - Kevin's Xbox Live ID is die200O - the last O is the letter O and not a zero. To anyone else out there - find him - he'll love it. (and I know it's a gruesome ID, but he chose it years ago and he is who he is)
Bern - love you and miss you!
And now I need to get to bed. I have a busy day ahead of me. I don't think Kevin's going to let me sleep tonight, but I'm gonna try.
First 2 from the Nov kit!
11 years ago
6 comments:
Love you too Les! Bern
I'm excited you are coming to UPMC. The VA is just up the hill from there. Thanks for asking about my husband. While you are in town, he will be just starting stem cell "harvesting". He is scheduled to go in UPMC Shadyside March 22 and get his life saving stem cell transplant MArch 24. Keep your fingers crossed. We are also seeing pain management, as he also is in constant pain. He has compressed/fractured his entire thoracic column. He was 6' tall when this process began and was measured at 5'9" the other day. It is a terrible, painful disease but here's hope we can at least get it under control and give him a decade or so. I'm happy that Kevin is getting his pain under control. I'm very interested to see what pain management suggests for us.
Maybe we could meet while you are in the "Burgh....we both are very busy. If I can do anything while you are here, you have my email. I can send you my cell number.
Great news!
Thoughts and prayers for your family,
Hallie
I hope you're enjoying your mom & dad visiting.
I've been following your posts for the past year +, ever since I saw the article about Kevin in the local paper. You, Kevin, and your whole family are amazing! You are all to be commended for what you have accomplished. I keep all of you in my thoughts and prayers.
I'm excited that Kevin will be going to Pgh in March. I live in the Pgh area and my daughter works for UPMC. Let me know if there's anything I can do to help you and Kevin when you're in town.
Marilyn
Great news that the procedure schedule is set and that Kevin is experiencing less discomfort. Hope you're having a relaxing visit with family. Thoughts and prayers.
Hey, Leslie
So, it took me a while to find this site, but I'm so glad that I did and now I can follow Kevin's progress.
I know you didn't receive anything from the 9/11 Flag Ceremony but there was a glitch in their system. I put together a few paragraphs about Kevin that will be read at the ceremony tomorrow and I will put a stitch in the flag in Kevin's name. I'll be sure to send you both pictures. Please tell Kevin that I am so honored to do this for him. I will pray for his continued recovery and for you to maintain the strength to help him with it. God bless you both! Love Sally
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