Monday, April 6, 2009

Day 310 - Apr 6, 2009

Kevin had a great day today. All of his therapies went very well and he has started using a brace on his leg and he walks so much better with it. He went a long way again today and barely needed to be helped so our physical therapist feels that Kevin will be able to walk with his quad cane on his own by the weekend. That's IF he works hard every day before then. I think that scares me. I can barely keep up now, lol.

And it's unfortunate, but Kevin has to sleep at the hospital tonight. He has to do that every 72 hours or he will automatically be discharged. He isn't too happy about it, but we can't move into the apt yet so we have no choice.

I don't really have much else to report tonight, so I am going to just answer some of the questions.

Ida - you and a few others have asked about us learning sign language. Sadly, we aren't going to be able to do that because Kev doesn't know his alphabet anymore. He can read words just by recognizing them, but he can't spell them at all. We are discussing starting him on a new drug that is used for Parkinson's disease. Believe it or not, this drug has sometimes helped TBI patients be able to talk better. There are some nasty side effects though, so we needed to wait for Kevin to be super stable.

Barbara Burke - you are so right about everything you said about 'talk farts'. I am planning to remember that term and use it with Kevin. I'm so sure he will get a kick out of it, lol.

Anonymous also wanted me to post a list of things Kev can say. I will do that soon. It takes time to remember everything so I want to make a list and keep adding to it until I have it all down.

Holee - actually Kevin is very aware of where he is and where he will be living. He only wants to visit his friends and was sad that he couldn't. I can be honest and say that Kevin is pretty aware of nearly everything anymore (yay!!) and he just loves the house he chose to purchase. I only narrowed his home choices down and he had to pick which one he wanted. He honestly loves the one he picked (with good reason - it is BEAUTIFUL!!!)

Jodi - I am feeling fine now. I really think it was a kidney stone because the pain went away nearly overnight about a week after it started, which it would do once it passed. Thanks for asking!

And now I am heading back to my parents'. Kevin is just about sleeping...

4 comments:

Jessica said...

It's always great to hear when Kevin has had a good day! That's amazing that he'll be using a walker soon. It should give him such a sense of independence.

Interesting about the Parkinson's drug, but then, a lot of drugs have so many uses. I hope it helps Kevin break through and really build his vocabulary.

I'm glad that you're feeling better and that your phone is working again! What a relief. I wonder what the phone guy did with it because my friend just dropped hers in the toilet and can't get it to work!

You're in my thoughts and prayers!

Anonymous said...

We all enjoyed seeing the pictures of Kevin on the steps of his soon-to-be home. What is the time frame on moving in there? Is the delay because of modifications having to be made? What types of things have to be done to the house to make it comfortable for Kevin to live there? You'll have to take some pictures of the house and post them here!

You also mentioned moving temporarily into an apartment. Have you been able to find something that is workable with Kevin's needs? As well as he is doing, I'm surprised he needs many adaptations/modifications at all!

Continued best wishes!!!

Anonymous said...

Hey Leslie,
This is Stacy we met when my brother was in SAT. We lost contact due to me not going back down to sat, I found you on facebook . I was glad to read what has been going on with kevin, Its great i will keep this short, so if you would like my e-mail address
colbert84@yahoo.com.God Bless and hope to hear from you soon.
Stacy Colbert

Grace said...

Hi there,

Actually, sign language might help. The alphabet is rarely used in American Sign Language. There's a great online resource at http://www.lifeprint.com if you want to try out some vocabulary signs.

Amy Grace