Thanks everyone for the tips on how to dry out my phone. I do currently have it in a bag of rice and hopefully we will see some signs of life within a day or two. In the interim, I went to Wal-mart and purchased one of those $20 jobs to get me through. It's charging for the night because I need to call Moe. I haven't talked to her in days!
Other than that, Kevin wasn't in a wonderful mood much of today. He is more than a little bit frustrated lately and I think I can see why. I have noticed in the last week or so that he is thinking about things more clearly and yet he can't voice what he wants to say. It used to be that all we thought about was pills and heart rate and input vs output and so forth and so on. Now he is remembering things and he is starting to feel emotions about all things in the past and the present. From what I could gather before, he was always happy or if not, he was upset about how he looked or sometimes even by his deficits. Now it could be any number of things going through his head and it's just not possible for me to know what he is thinking. It used to be so easy, darnit! Oh well, I want him to get better and better, it's just hard when you don't always know what he wants.
And to touch on a couple more questions:
Lorraine, Rick and Howard the Duck - BAMC stands for Brooke Army Medical Center in San Antonio, TX. That is where we will be going for some of Kevin's repair work.
Cathy Morse - you asked how Kevin tells me things and mostly it's just our own way of communication. His PT once said there is some strange bond between us for me to always know what he wanted - sometimes even before he did. But to answer your question - sometimes he makes a hand gesture and once I figure out what he means by it, we use that gesture for that thought from there on out. For example, you asked how the 'tells' me he wants to go back to the hospital. Well, he points to the door of the apartment. That means he wants to go somewhere so I start naming places, ie the hospital, Wal-mart, Target, etc.
Some of the other ways are:
Subway - he hums the Subway: eat fresh theme song.
Shower time - he rubs his chest as if he is cleaning it with his sponge.
Wants his phone charged - he lays the phone on his chest and runs his finger from the phone to the floor as if following the cord.
Wants his iPod - his finger goes from ear to ear and then down below his chin to his belly. Again - following the cord.
He holds up 4 fingers when he wants to watch Die Hard 4. Y'all have no idea how many hours it took for him to make me understand that he wanted to purchase that video. Honestly, I could not for the life of me figure it out. I knew he wanted a movie so I loaded him in the car and off to the video store we went. He found Die Hard 1 and touched the number on the box and then held up 4 fingers. I just wanted to cry with relief. (and you had to know that they didn't have DH 4, so I went to 3 different stores to find the darn thing!)
For Spiderman (Thanks, Connie!!) - he makes this strange spider like motion with his hand and then he holds up 1, 2 or 3 fingers so I know which one to pop in.
When he wants his pills (he reminds me when it's time, lol), he makes a small circle with his thumb and index finger to replicate the appearance of a pill.
He also points to exactly where on his belly I am to give him his shot every day. I can't stray either - no matter what, lol.
As you can see, we have our own way of understanding each other, but it's getting harder and harder because he is thinking more in-depth now. It's not as simple anymore.
I am also trying to make him talk more. Diane and Mary Jo made me realize that I was not forcing him to talk because I did already know what he wanted. So now I need to just get him to at least try to say the word. I am thankful to them for seeing something that I just didn't.
And now I need to get cupcakes made for Joel. His birthday was this past week and he wanted white cupcakes with sprinkles, lol. He is just doing so well too!!
First 2 from the Nov kit!
4 years ago