There really isn't all that much to say tonight, but I am going to give y'all a bunch of pictures.
The first one is from yesterday when the kids met the football players I mentioned. Forgive me if the names are wrong, but the players are Ike Hilliard (TB Buccaneers), Terrell Davis (Denver Broncos), Laurent Robinson (Atlanta Falcons) and Darrelle Revis (NY Jets).
The next two are of Kevin walking around the ward today. I am told he did it much faster today and he didn't even need a break this time (although he was WIPED OUT after completing the trip)
And this one is of of us eating our dinner outside tonight. It was a balmy 70+ degrees so we dined on the patio.
This next one if of my kids making faces at me:
And last - this one if of me at the beach yesterday with my sis, Kim. We weren't able to get one pic of us together. Bummer.
And that about sums it up for today. I am going to answer a few questions though...
Long Time RN - I did order a few items from Solumbra today and I did talk to them about designing some for the 'younger' set. They promised to take it to the manufacturer. Who knows. I am just glad Kevin is able to understand now that he will have to wear these clothes if he wants to go outside. I also showed the website to our doctors today and asked if the military or VA can supply them as they are necessary for at least the next 5 years. That would be awesome!
To anonymous - the CSF issue is resolved at this point. He will need plastic surgery - more than one too. The house is still up in the air. We agreed on a price, but are having trouble getting a mortgage for a 20 year old with no credit. I can't help because I don't have a 'real' job. Pretty much stuck between a rock and a hard place. I admit that I am getting so disgusted and discouraged about it too.
I have also contacted many organizations for help and a few have said they would - and then never called me again. I believe at least one even posted here on the blog, but I guess the economy is just too bad right now.
We have also gotten a few personal donations and believe me - we appreciate it. All of the money is laying in the bank waiting for this to go through. Hopefully it will all work out. And soon. We are running out of time.
To anonymous about the 173rd reunion - it's just too early to tell as of yet. I would like to go, but we will see.
Brenda - you mentioned putting a monitor in Kevin's room to hear him if he wakes. I had to chuckle at that one. We live in a tiny little room - kinda like a hotel room. This means that he gets my bed and I get a rollaway next to it to make sure he doesn't fall out. I have to have everything ready so that I don't have to leave the room once we are alone.
Emily - neither Wed or Thurs will work for us. The kids are doing some football things and won't really be around. Can't tell you guys anymore than that yet though, lol. I will try to contact you tomorrow to see if Friday is ok for you.
And now I am going to watch tv on the computer, lol. I would do anything for a PVR so I didn't have to watch everything online...
First 2 from the Nov kit!
4 years ago