Oh boy. I sure opened a can of worms, didn't I?
First (before moving on to Kevin) I do want to ask that nobody take any action on our behalf. I do realize that some of you already have, and I know that everyone means well, but at this point I need to get through the days the best I can and I can't have the media or a bunch of politicians stepping in and making things even worse. And believe me - they will, no matter how good intentioned their help is. Y'all need to understand that it was my first thought to call the papers and such too, but you have to think about how the hospital is going to react. Yes, I know that Kevin will get the care he needs, but then we will be virtual pariahs and nobody will want to give us a hand for fear of the repercussions. To my way of thinking - the media is a last resort and I have yet to get to that. (but believe me when I say that when I reach that place - I won't hesitate to call EVERYONE!!)
I do honestly believe (after today) that we can work out a plan of action - it just takes talking to the right staff member and using the right words. I also had some of the staff members on my side because they were seeing the things that were going on - that helped immensely. Anyway, I did this today and things are already rolling.
The head doctor of the ward is in DC tonight and he has already discussed Kevin's case with a few neurosurgeons there. He called me on his cell from DC to tell me this. I also sat down with the head neurosurgeon here and had an hour long discussion about our options. He also came in, with the company rep for the shunt, and he, himself, was able to reprogram it on the first try.
He also believes that the reprogramming isn't going to work and Kevin may be going back in for surgery in the morning. To be honest - if that happens - we will discuss it tomorrow instead of tonight. In the meantime, I have asked for this doctor to step in and to keep the young resident away. I don't feel he is capable of handling the situation and we need a more seasoned doctor. He told me that he can't do that, but we shall see about that - this is where one of those 'guns' come out. If I don't have him as our doc by morning, I will be making phone calls.
And I know some of you have talked about legal representation but I was under the impression that active duty soldiers do not have any legal options? My son is still active duty so he doesn't fall under veteran status yet and he is still considered government property. Does anyone know if this is true?
As for us moving to another hospital - there is no time for that. Any neurosurgeons would have to come here and step in. This is one of the reasons I feel trapped. Kevin probably could fly (it would be via the Army - not commercial) but we would have to be leaving in the morning. It's unfortunate that our Fed Recovery Coordinator is at a conference too, so she has not been able to help today.
But anyway, let's give it through tomorrow and see what happens. Maybe his head will shrink back down because the shunt will start working and none of this will matter. I will say that the fluid draining from his ear has almost stopped and that's a great sign.
Ok, I am so exhausted that I keep closing my eyes while thinking of what to say so I need to get to bed. I sure hope everyone understands where I am coming from...
First 2 from the Nov kit!
5 years ago