Today was another good day. Kevin's appetite has returned full force and he ended up eating dinner 4 times in 3 hours. We did go down to the house for a few hours today too and it was really nice.
He did all of his therapies again and is just popping out with more and more words. He is also sitting on the end of the bed (or the edge of his chair) for minutes at a time and we are working on his balance while sitting there.
We also have him stand to transfer from bed to chair every time and I try so hard to get him to stand still for a few minutes, but he always wants to move. Take a step or two - just move. He never could stand still, lol.
And he is becoming accustomed to what he looks like, but I must say he isn't seeing the 'real' thing. His head will be extremely sunken on the left side (until we can have plastics step in and fix it), but because he has CSF built up over the flap, it almost looks normal. This is what he believes he looks like and I am going to let him believe that. I was happy to see him remove his head bandage tonight to show my sister while we were Skyping though.
We have also seen a huge increase in how much he is using his right leg now. He is even able to pull it up to put his own sneaker on and he now finds it funny to kick everyone in the butt with it when they turn around. He can definitely take a step with it, but when it comes time to put weight on it to take a step with his left leg, he does drop a few inches. It's going to take time and lots of practice to make it strong again.
We also had a visit from the attending neurosurgeon (not the young resident) this afternoon. I went in this morning and told my doctor that I was going to be calling my congressman today if the resident showed up again. Lucky for all of us the top dog came in. We are going to give it until Monday to see what happens with the CSF and if it continues to go down, we will reprogram the valve again to a lesser drainage rate. At this point I don't believe we will have another surgery, but that could change in the blink of an eye.
I think that's about it for tonight. I did take some pictures today, but frankly - I am just too lazy to download them tonight. It is now 1am and Kevin just fell asleep a few minutes ago. I want to do the same so maybe tomorrow night...
Before I forget though...Petra - are you ok? You mentioned needing extensive treatments for you health and I am just hoping you are not too sick? It's none of my business so if you don't want to answer - you don't have to...
First 2 from the Nov kit!
1 year ago