Today I am not going to focus on the negatives. I will say that the young doc did come in today, but I have already taken steps to have him removed from our case.
I am, however, going to focus on what an awesome day Kevin has had. First, it appears that the shunt may be working. We did not have surgery and we are going to check the fluid buildup tomorrow before deciding on surgery for Thursday.
Kevin also was like a new person today - or should I say the Kevin of old. He was wide awake and alert all day. He did all of his therapies and laughed and carried on with everyone. He actively moved his leg and arm around repeatedly and grinned each time he did it. He asked for a drink of water instead of gatorade (all night too) - something he has not done since he was able to drink. I didn't even think he remembered there were other drinks out there, lol. He also has been trying to talk and say all kinds of new words. He pretty much was trying to repeat everything that everyone said today. He also - out of the blue - said "I love you" in a nice fluid tone - not forcing every word to come out.
He also woke up this morning and asked the nurse to put him in the shower chair (something he absolutely hates) and give him a shower. He also asked to get in his chair this afternoon and go to the house for dinner. He ate a huge plate of lasagna and half a loaf of french bread and then we watched the Spiderman movie that was sent to him for Christmas.
And I don't know if I ever mentioned that Kevin would mentally 'shut down' when too much was going on around him, but I can say that he did not do that even once today. Not once! I can't begin to tell you how often he would do that throughout the day. There is even a sign on his door that no more than two people can visit at a time because he couldn't handle it. But the more people that were in his room today - the more he showed off!
It was really an awesome day - and even Kevin realizes it!!
First 2 from the Nov kit!
3 years ago