Today was a horrible day. Kevin was in extreme pain most of the day. Breezy actually went in at 9am and I was going to sleep in and go up at about noon or so, and she called me at about 9:30 and was scared. I ran up there and he was just wiped out. All the docs were there and the nurses too. He actually was like that most of the day - screaming in extreme pain one minute and literally sleeping the next minute.
I personally, once again, think it's too much fluid coming off his head at one time. When I got up there this morning, more than half of that sac of fluid was gone. It was there last night when I left and I asked if Kevin slept on his right side last night and I found out he did - causing the CSF to build pressure and drain faster. That whole sac is nearly gone.
Anyway, we did go for a CT scan, but I haven't heard the results yet. Other than that, neurosurgery didn't come up and take a look so we will see what tomorrow brings.
Needless to say though, we didn't do anything today so other than the pain issue - there is nothing to report. We didn't even come down to the house or anything. Hopefully Kevin will feel better tomorrow and we can get back to fun and games. I just hate to see him hurting like that. I would do anything to take that away!
First 2 from the Nov kit!
3 years ago