Yay! Kevin got to sit in the chair today!! At first they weren't going to do it, but I stayed strong, talked to the doctors and plead my case (yet again!). We left him in it for over an hour and I was so happy to see that he was even able to hold his head up for most of that time. And none of his numbers went up (heart rate, blood pressure, respirations etc) so he handled it really well!
And to top it all off - when we pulled Connect 4 in front of him, he picked up the first checker and went straight to the top to drop it down in the slot instead of into the hole like he did last night! It was almost like he thought about it all night and remembered! But - he couldn't actually get any to drop in because the checker would be off by a fraction of an inch so he eventually got frustrated and quit.
Phew! Frankly, all of this was just exhausting. It took 45 minutes to get him into the chair. He has to be unplugged from everything, transferred to the chair, situated just right, strapped in using 6 heavy straps and then all plugged back in. Let me tell ya - I will never take for granted the ease with which I can plop my butt into a chair!
And...because of the Connect 4 issue - my case worker contacted Tampa and hopefully tomorrow we will be accepted into the program. Once that's done - we start the paperwork on transporting him (and us) to Florida. Keep your fingers crossed for tomorrow's news! We are so ready to go...
First 2 from the Nov kit!
4 years ago