I had a meeting today with the neuro-psychologist at the VA that did Kevin's testing. At about 20 minutes or so into the meeting I knew he was not really hearing anything I had to say so I grabbed my purse and left right in the middle of it. There was just no sense in wasting my time and at this point it doesn't really matter anyway. It's done and it's on the record that - according to this very important doctor - Kevin will see no real gains in his life. He pretty much won't get any better because he is now 3 years post injury and people really only get better within the first year.
Honestly, sometimes people just can't see the forest through the trees.
It just ticks me off though that someone so narrow minded can have such an effect on someone else's life. I really regret allowing this test to be done. I should've known better.
So as you can see this is still a very sore subject with me. I think I mentioned a little bit about it, but it just mainly said that Kevin can't accurately be tested because he can't speak, but that he doesn't understand what's going on around him most of the time - if ever. The doc reiterated that today, but if that were true there would be no way that Kevin could do all that he can do, could respond as he does in conversations, could remember exactly where each DVD is in a book that holds 300 of them and he surely wouldn't be able to run circles around me on his phone and his iPad.
Now I'm not saying Kevin understands everything - we still have a long way to go - but he knows a lot more than this guy gives him credit for.
Frankly, this is the last time I am going to think about it. I know what I know about Kevin as do all of the people that are around him at any given time. WE are the people that matter. Not some doc that saw Kevin for two hours of his life and will probably never see him again.
So now I'm all riled up again.
But honestly, I sat outside the VA hospital today waiting for the car and just felt so tired and dejected. I am just so exhausted at having to always deal with so many issues on so many different aspects of Kevin's care. I shouldn't have to go see a neuro-psychologist and tell him that he didn't see things clearly. He can't fathom that he's maybe not 100% correct because it's what he's been taught. In a book. Not in life - but in a book. Well Kevin isn't in a book. People like Kevin aren't alive. They die when this type of trauma occurs.
So I say "let's rewrite the damn book!!!" Since there appears to be proof - let's all agree that you CAN get better - significantly even - after a year, or two or even twenty!
Maybe folks should at least not put it in someone's record that they have no potential. Heck, a comment like that could cause all of his therapies to be stopped. I mean...why spend the money on OT, PT and speech when he isn't going to gain anything, right?
Ok. I need to stop because I am just ranting here...
First 2 from the Nov kit!
5 years ago