Nothing much happened today. Kevin was taken for a little spin in his chair, but other than that he wasn't really interested in playing anything or even writing on the board. I can only imagine how disgusted he has to be. He has to have 2 eye medications put in his eyes every single hour of the day and night. No 'real' rest for him so he has to be frustrated and sick of being bothered.
Joel came through his surgery just fine. I checked on him when I left Kevin tonight (he is in the next room now) and he was sleeping so peacefully.
If nobody minds, I am just going to answer some of your questions because there really just isn't much to say.
First, Lisa - No, Kevin doesn't shake his head or truly give any indication that he understands when you ask a question. That's one reason I am just not sure that he really chose the word YES yesterday on the board. I want to believe he knows, but in all honesty - he just may not. As for his neck muscles, he actually sat in the chair for almost 2 hours today with no neck brace. This was the first time we didn't use it while he was sitting up. And him using his eyes to blink for yes or no - that's not easy for him to do. His eyes don't shut, not even when he sleeps. They were badly burned and although he has already had plastic surgery on them twice, he will need a few more surgeries before we are all done.
Jenna - thank you so much for asking if I need anything from home. I really don't though. I live in a hotel room so space is limited and since we will be leaving soon I try not to add anything to my stash as I will have to pay to have everything shipped to Tampa when we leave.
Karl - we have a few pictures here that we show Kevin and to be honest - lately he has been getting very upset when we show them to him. I don't know if it means he remembers and misses his old lifestyle or if he doesn't remember who anybody is and is frustrated. That's a good idea though, writing the names on the board and asking Kev who is who. I will try that soon!
I think I got all of the questions answered. If I missed anything, please ask again. My inbox is huge and I try to keep all the questions there until they are answered. (I get all comments emailed to me).
Oh, and I was told I probably wouldn't hear before Monday about Tampa's acceptance. Man, I hate the waiting...
First 2 from the Nov kit!
6 months ago