Today was a pretty good day for the most part. Kevin was put into the chair and we went outside for quite a while today. It was getting ready to storm so it was much cooler out and the breeze was really blowing. Maritza and Jose sat out there with us and it was just a nice half hour or so.
We then went in and sat in front of the windows again and we decided to call my parents. Well...that was rough. Everybody happened to be at their place having a family dinner and it made it all the more horrible that we can't be there - and won't be for a very long time. But the worst part was when Kevin heard their voices (and especially my nephews Michael and Scott). He got a very upset look on his face and started swatting the phone away. Me and Breezy both just broke down and started crying. We had to walk away and hang up the phone and get back under control. I just wish I knew what Kevin was thinking. Did he not know what the phone was? Did he recognize their voices and miss them? Did he realize he can't talk and was upset? What? What the hell is he thinking? God, I hate this part! The not knowing is just going to kill me, I swear.
(Many, many tears where shed between these two paragraphs as it is just so incredibly hard not knowing. And I really miss my family and my friends.)
That was pretty much the only bad part of the day though. For the good parts, Kevin was much more alert today and for a longer period of time. He really seems to need the stimulation of sitting in the chair and going for a ride around the 4th floor. We also used the dry erase board quite a bit and I believe we got some answers out of him today. I put YES in the upper left corner and NO in the lower right. I asked him three questions and had him point to YES or No for the answer. He pointed to YES each time. Now it could have been a fluke, but we will see for sure tomorrow.
One of the questions I did ask was if he knew I was his mother. I sure hope he meant the yes. I also asked if he knew Breezy was his sister and then if he remembered hearing Gram and Pap on the phone. All three were yes answers. I tried another question, but he was done. No more using the board.
I want to thank everyone too, for their suggestions. There are so many things y'all mentioned that I hadn't thought of yet. Some I did - like trying to contact Tampa to find out things I should be doing as opposed to things I shouldn't. I don't want to start a bad habit just by not being aware of proper procedure, kwim? And I did go buy some toddler games (blue and red ball with shapes) and Kev was really mad when I showed them to him. I am thinking this means he was offended that I bought baby games, but again - I have no idea what it really means and I am just guessing. I did tell him that I would throw them away as soon as he showed me he could do them, but he was having no part of it. None!
As for the game of Memory, my friend Kristen and her son Travis (Hi Travis!!) sent me a game a while ago to play with Kevin. I will take it over tomorrow. Thanks so much, Ida, for jogging my memory (no pun intended, lol).
Holee, I will have to get back to you for sure on what parts of the brain were removed and damaged. I do know they told me the speech part and motor skills were removed, but not sure about much else. I will say that he appears to 'mouth' words, but no sound comes out. Now from what I read on the web, the part of the brain that handles speech is actually the part that gives the ability to form words. I am not sure about this, but if he is mouthing the words - then he is already forming them. I could be so wrong about all of this though.
Brenda, I will check into those puzzles. Good idea. I will also see if we are allowed to film his rehab. The hospital we are in now does not allow any photos to be taken (but I just asked last week if they would reconsider this). I see their point, sorta. I don't feel just anybody should be able to walk in and take a picture, but if a parent is there every single day - they should be able to take a picture of their son hugging their daughter. Absentee parents - No. But if someone has their child's best interest at heart, no matter what the cost - it's apparent that they would show dignity and respect with their photo opportunities.
I also like the idea of the magnetic letters and Wendy mentioned the ping pong paddles. Cool ideas.
Ok, I have written way too much, lol. I want to quickly ask everyone to keep Joel (Maritza and Jose's son) in their thoughts tomorrow. He is getting his shunt put in. His situation is so similar to Kevin's...
First 2 from the Nov kit!
6 months ago