It's been a while since I've written and mostly things have been good. I will start with the bad though, so that we can end on a good note.
Two days ago, Kevin was laying in bed and we were talking and he got this very strange look on his face. It happened twice within 2 minutes and it took me almost five minutes to figure out that Kevin was telling me his body went 'paralyzed' for about 10-15 seconds both times. I took him to BAMC and after roughly 11 hours and multiple tests - they sent us home.
Although nobody knows for sure, they agreed with my thought in that Kevin had his first seizure. Luckily they were both very mild, but still...where did these come from? Why now, after all this time?
The docs did find that Kevin must have some sort of infection though because his white blood count was high, he has blood and protein in his urine and his kidneys aren't working correctly. He also had VERY high blood pressure while there and I think it's time something is done about that as it's always just a bit high.
So we were sent home to meet with our primary care physician and now I'm trying to get him in to see someone. The VA clinics can't get us in before 6-8 weeks so I put a call in to our polytrauma doctor to see if she can either get us in to see someone or take care of figuring out the problem herself. My last resort will be to just find a non-VA doctor and take him there.
I will let you know what we find out.
Previous to all this - Kevin has been doing very well! We all went to Florida for a few days (Breezy and Christian too) and surprised everyone by just knocking on the door. They had no idea we were coming and the looks on their faces were priceless. It was a really great trip and I'm glad we went as my dad is deteriorating. It was really great seeing everyone as it's been close to a year since we have.
Kevin has also been accepted into the Wounded Warrior Project's Independence Program. They will be sending someone out to work with Kevin on becoming more independent. I don't know much more than this yet, so I'll have to come back with more info later.
And we were supposed to go back to Aspen, CO for a brain injury retreat in about 10 days, but with the seizure activity, I think I'm going to cancel our trip. I feel horrible as Challenge Aspen has already purchased our airline tickets, but Kevin's safety is much more important.
Other than this, Kevin really is doing fantastic. He is talking up a storm and learning new things daily. I am quite proud of him and can only hope whatever is going on is just a temporary thing.
And to end, here are a couple of pics of Kevin. One with my mom walking along the little boardwalk that was at the hotel we stayed in.
First 2 from the Nov kit!
5 years ago