Well, we didn't sleep at all last night as Kevin was in a lot of pain again. The problem is that his head is filling with fluid where he was operated on. It's stretched so large and it is incredibly painful. He pretty much screamed and cried all night long. Luckily we had a doctor's appt this morning and we did end up draining about 60 CCs of fluid today and it just so reminded me of the old days.
And to make matters so much worse...Kevin has tested positive for Staph(sp), or MRSA - whichever you want to call it. I just broke down when the neurosurgeon told me this. It's just so scary.
So I guess we have two options on how to deal with it:
Conservative - where we try antibiotics for a while and wait for a new culture to come back and see if the results were wrong.
Or Aggressive - where we just go in and remove everything. All of it. The putty and the plate. There are so many variables to this one and I really am too tired to get into them all, but Kev would have no skull again and he would have to be infection free for 6 months before having it replaced. I am also not sure where we would be - in Texas or Florida. I really don't want to be in Texas as my dad is just starting his chemo and radiation. But I won't see the neurosurgeons at the VA so I would have to see if the new guy we didn't even go to yet would take us on. There are just so many things to this option...
So we decided to go with conservative for 5 days and then we will probably have to remove everything if things aren't working by then. Wednesday will be the day and it's going to kill me waiting to see what is going to happen.
I just can't imagine having to go backward. Frankly, I'm not sure I have the energy to do this all again and I'm not sure I can keep Kevin from giving up. When we were talking about having to remove it all with the surgeon, Kevin just kept saying "NO!" because he is just as tired as I am. He has just been through so much and I have to ask - when will it end?!
First 2 from the Nov kit!
12 years ago
22 comments:
Oh don't ask where will it end ? This is the time for PRAYERS and many of them. Heck with the good thoughts. God be with you Kevin Kammerdiener. Many prayers being sent for Kevin and your family. You all must be so exhausted, but mostly mentally exhausted. God please help Kevin. Amen.
Sorry in the prior post meant to quote you correctly "when will it end?" as that is a bit scary to hear. We are so sad this is happening to Kevin and aching for all of you. Praying he is soon helped in a positive way.
A total lurker here, checking in on all of you! I pray, pray the antibiotics will help Kevin. Sending strength and positive thoughts to your family ~ Jodi
serenity prayer.. always
you are a brave and strong mother, u can and will get through this all of this. I have walked in your shoes, its a hard road, tell yourself daily that u are strong. God bless you all.
No lurkers but here since day 1. Kevin is being prayed for all over the world.
Oh no. Seriously no. I keep having to erase my sentences because they contain swear words. I just can't imagine. I am so sorry. I too am going to bust out every prayer and every positive thought and send it across these many miles.
I know that you will get through whatever happens, but hoping with all of my heart that you won't have to.
No matter what setbacks befall you and how long it takes, we're all offering moral support.
I'm with Lisa D, erasing swear words before submitting.
After all this time, NOW Kevin tests MRSA +. That sucks. Glad to read you're going for the five day treatment and retest. Hope and pray the ATB therapy takes care of it and NO removal is necessary.
Prayers for strength, patience, healing and mercy lifted for your family.
Oh,Leslie,I feel so bad. You have been strong and optimistic through everything and now to hear this has to be so disheartening for you. And poor Kevin. I pray,pray,pray that the antibiotics work. My brother Van had MRSA, and he is doing fine now. The antibiotics fixed him up in no time. Of course I understand that he didn't have all the health issues that Kevin has,but hopefully, the treatment will work and nothing more will need to be done. Whatever happens, I know you and Kevin will deal with it as you always have. Stay strong. My prayers and thoughts are with you always. Love you.
Leslie, you are not going to give up. Kevin is not going to give up. I know you guys are tired, but look how far you have come already! You have each other to get thru this. You have ALL of us out here to get thru this. C'mon Les. I know it is scary right now, but you and Kev and Breezy are amazingly strong people. You will make it thru this tough situation just like you have made it thru all the others. I wish I were there to give you a hug and my strength. I love you guys and my heart hurts for you. I am crying as I type this because I want to take your pain and worries away and help you get thru this 2400 miles away. Les, I know you are a strong lady. You and I are alot alike :-) and I know you have it in your heart and spirit not to give up and to get thru this and help Kevin thru it. So many prayers and good/positive thoughts are coming your way from so many people out here. Feel those Les. Take them in and let them help you find the strength to get thru this. If we could all be there physically to help you, we would, but I don't think you have room for all of us..lol. So just feel and know in your heart we are all there trying to help you thru this. I won't call you because I am scared to call at the wrong time, but you know my numbers and I am just a phone call away. I may not have the right words to say, but I have an ear to listen and a mouth to tell you I love you. Hang in there!!!!!! Stay strong!!!!! Keep your head up!!!!
POSITIVE AND HEALING THOUGHTS FOR KEVIN.
STRENGTH AND COMFORT FOR LESLIE AND BREEZY.
SAFE THOUGHTS FOR ALL MILITARY PERSONNEL AND THEIR FAMILIES.
BIG HUGS AND ALL MY LOVE TO ALL OF YOU!!!!!!!!!!
Andrew's Aunt Jodi
I am with the others...the first thoughts that went thru my mind can not be published.
Sending you many many prayers from here in Kitt. Pa. Will continue to pray that the antibiotics work, and God grants you, Kevin and Breezy stength and endurance as you travel this road.
God Bless
Oh, Leslie, I just sent a prayer your way. Please have faith that this too shall pass. I know you are scared and so, so tired, but please know in your heart that Kevin will be ok. You two have gone through worse and you two will get through this. In whatever way we can, we are all here for you.
Leslie ~ I have nothing better to add than that already posted, but wanted to post so that you could see and read yet another message of prayer and support. And remember that many who post, go on to send emails to others to ask for prayers and strong support. This thread reaches world wide.
May all the strength and guidance and support you need be yours immediately.
Love, prayers and hugs, always.
Sending prayers...
A.
Love, kind thoughts and prayers are with you and yours.
Leslie:
I wish I knew what to say or do to help you. What I can do is pray that you all will get through this like you have from the beginning. YOU are a very strong lady and things will get better. You have so many people praying for you and I believe that God does hear those prayers. Sending lots of prayers and strength your way.
love
debbie
Leslie, I read your posts daily and share them with DH. I am sorry to hear this latest news and can't imagine how disappointed you guys must be! We will be hoping and praying that the antibiotics take care of this latest issue and you guys can get back home soon!
If you look it was already said that Kevin is being prayed for all over the world. What Patricia stated is so true because people share with their churches and friends, which means even more people are praying for Kevin. We can only send you strength. You are such a strong person. Maybe tonight you will be able to get some much needed rest. Talk to God. HE listens.
Oh no! My heart just dropped to hear that Kevin has contracted MRSA again and I'm praying that the antibiotics do the job again. Kevin's always been a fighter and I believe that despite his understandable anger and despair, that he will fight this infection. No matter what happens, God will be with you all through this. I'm praying that He gives you strength and determination; the doctors, wisdom; and Kevin the comfort and healing he needs. Hang in there.
Oh God, Leslie; words can't express my sadness at Kevin's latest setback.. yet we all know what a fighter he is and he'll battle back from this as he has from every other horror he and you have endured...all my best to you and your family as always,
Love and peace.
Anne
More prayers from another small corner of the world. HE does hear and answer....please Lord, hear us now, in Kevin's time of great need and grant peace and mercy as only You can.
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