Day 405 - Jul 8, 2009

Today was such a very long day. I had a meeting at the hospital with the whole team so that we could resolve some issues that we are having. The first one being the neurosurgeon situation. Y'all remember that I am not happy with the neurosurgeons at the VA hospital so we discussed us going out and finding a neurosurgeon in the Tampa community, not associated with the VA hospital. I should have a list very soon of neurosurgeons in the area for me to 'look into'.

The second issue is therapies. I think I have already touched base on the fact that Kev just can't tolerate back to back therapies and we are going to start going elsewhere for OT, PT and Speech. I stood firm and hopefully we can start going to the new place by Monday.

I also had a little breakdown today because I left Kevin's driver's license lapse. This was very hard for me to do. It's not easy to see your son lose even more of his independence and I HATE the fact that is was me that had to take that away from him. It really just isn't fair that my son is 21 years old and will probably never be able to drive himself anywhere.

We also discussed Kevin's pain issues and we are going to take another cat-scan to make sure everything is looking okay up there and then we will know better if we need to adjust his meds or whatever.

And getting back to the home health aides...we have an aide come in in the mornings to help Kevin get a shower and put his burn garments on and so far I am not doing too well with it, lol. I am trying to learn to allow her to do the work, but it's so hard to do after having done it myself for so long. I have this little routine of sorts and I keep stepping around her to do it.

We also have a man come in the evenings so that I can get out for a little bit, but I won't leave until I know that Kevin is comfortable with him. I did tell Kevin I was going shopping tomorrow night and he seemed okay with it, but tomorrow will tell. I struggle with him as much as I do with her - I am just not used to having someone in my house and doing things I always do. I'm working on it though and I will get used to it, lol.

And now I am just going to touch on some of the comments/questions about the pool.

I am aware that a fence needs to be put up, but it can't be done ASAP because they still need to get the trucks in there. The pool is still being built and I assure you - no one is seeing this old body in a bathing suit so a fence is a necessity!

As for the screen enclosure - that is also ordered, but the screen does not protect you from the sun - just the bugs and alligators.

And now I am off to just lay here and do nothing...