Sunday, September 13, 2009

Day 471 - Sep 12, 2009

Today was a pretty lazy day. Kevin and I lay around all morning and then we grabbed Anthony and went to the mall. Kevin did a little bit of shopping with Anthony and I just walked around by myself.

We went to dinner after that and I could see that Kevin was starting to not feel well so he and I left the restaurant earlier than Breezy and Anthony and went home. He ended up getting really sick. It was a rough ride because it was raining and the windshield wipers sometimes make him sick anyway and they only compounded the issue tonight. The doctor had increased his nausea medication a few weeks ago and he hasn't thrown up since then (I don't think so anyway), but he made up for it tonight. Once he vomited though - he felt completely better.

And other than that - we did nothing. He is sound asleep right now and I am going to sign off and head upstairs and scrapbook for a little while.

9 comments:

Anonymous said...

Hi Leslie
Love the new look!
Just a quick thought about getting a cat - speaking from experience, you should try to find a younger, declawed,fixed cat that has never been an outside cat. Then you don't have to worry about fleas, rabies, getting hit by a car,etc. My cats have been in the house since we brought them from the shelter (8 years ago), except for trips to the vet in a carrier. Kittens are cute but more excitable and a little more work until they settle down, but still wonderful pets. Lots of love and prayers for the upcoming trips to DC and Texas.
Aunt Mona

Anonymous said...

here she goes again eating out then next week she will be crying that she has no money for her trip to DC

Anonymous said...

Leslie this is not for you but for the previous comment. If you have nothing positive to say keep it to yourself!!! Do you have any idea that this wonderful mother and woman has given up her life for Kevin. If she wants to go out to eat so what. I wish she would get a makeover or go to a spa for the day because if anyone deserves it it is Leslie. Do you hear her say those things heck no. Big deal dinner. If you think you could do what she does go trade places with her for one day. You couldn't handle it. SHAME ON YOU. that had to be the rudest comment I have ever seen on her blog not yours. You really should apoligize. or stop reading. or better yet send her a certificate to pamper herself for a day. I don't personally know Leslie but my son is one of Kevins freinds and I think she is doing one heck of a good job handleing everything including losing everythink, By her choice might I add to take care of Kevin.
Leslie you do what you have to do to keep your sanity and Joy. We love you girl and pray for you daily.
Always in my prayers (Wayne's Mom) Becky :)

Anonymous said...

Sad to say MANY of us who DO know Leslie and care about her - agree. A good financial adviser would benefit both Leslie and Breezy. Go ahead and say we wouldn't care about her to say this, well, certainly we would. Maybe the behind the scenes comments about subliminal financial messages being "hinted" in the blog will stop and she won't be embarrassed by all of this nonsense anymore. Sent only to try and help these little remarks-STOP. The family doesn't need this "bad blogging" starting all over again. That is for sure. Also to attack other bloggers does not serve any purpose either but to keep a negative situation going. A schedule is something that it sounds like would help all family members. If Kevin is treated like everyday is a job and the others too, he will go to bed at night because he is tired. It would also help to eliminate any caffeine products after 6 pm to not keep you awake. If you are forced at a regular job to stay up during the day, you sleep well at night. Pleasures like video games, scrapbooking, watching movies can be done in the evening as a reward. If Kevin knows he cannot stay up all night and no one else can either, he will sleep. It is good for everyone to have some alone time to do their own thing and be away from each other. A household of all hours with no schedule ends up being a household of chaos. I hope this helps all involved.

Anonymous said...

Leslie,

I just want you to know that I support you 100 percent and send lots of warm hugs your way from Sacramento.

Cathy M

Miss Em said...

Anonymous,

YOU do NOT know who bought diner. YOU do NOT know where Leslie went to have diner, either. Besides, YOU have No right to tell Leslie that she can NOT go out to diner even if she does buy it.
So Anonymous, why
DON'T
YOU
GET
THE
HELL
OFF
OF
THE
BEAT-UP
ON
LESLIE
WAGON!!!!!

If you, Anonymous,
CAN
NOT
GET
THE
HELL
OFF
THE
BEAT-UP
ON
LESLIE
WAGON
THEN
J. U. S. T.
GO
AWAY.!!!!
*************

Leslie,
Hope that diner, what you could enjoy of it, was nice with lots of conversation and laughter.
Was sadden to hear that Kevin had gotten sick during and after diner.

"the windshield wipers sometimes make him sick anyway"
??Have you had anyone watch Kevin when the wipers are on.

??Is he following their movements by tilting his head with their movements?
**I know if I do this just sitting at the computer the Meniere's Disease in my right ear wants to go nuts...dizzy, nausea, vomiting, etc...because the inner ear is have trouble balancing the fluid inside that space.
**I also know that a change in air pressure[storm fronts] can also trigger this problem. I know that it can make it extremely painful and nothing, repeat NOTHING will make the pain go away except a drug that knock one out TOTALLY.

*****LIGHT BULB TIME!!!*****

This might explain some of Kevin's inability to sleep or rest at night. Why he keeps coming back to you and waking you up because HE TRUST YOU to make it better.
**You and Kevin need to figure out a way for him to tell you if it's his head or if it's his ears that are feeling swollen and extremely full.
I know that when that happens to me I tilt my head more to one side to ease the pressure off the inner ear. [It doesn't go away it just eases the pressure.]


??Does he scratch at his ear constantly at times? That's a sign that there is a fluid drain. If that is happening, get ready for a session of nausea and dizziness.

Don't know if this helps you but I hope it will give you some ideas on what is happening to Kevin. Ask his hearing/speech theropist if this is a possibility.

Weather change here and the right ear is giving me fits.

Take care and try to get as much sleep as you can.

Miss Em
Austell, Ga.

PS Sorry about the yelling but that [fill in the blank] pushed the wrong button at just the right time when I'm not feeling like hearing his/her bu!!sh!t.

pommom said...

Love is kind....whomever "anonymous" is, there seems to be no love when comments , directly intended to be hurtful, are made. "Anonymous" has never walked one step in your shoes Leslie and while ignoring them may not be possible, please know that the vast majority of us love and support you and the amazing job you have done and continue to do on a daily basis. This is a place you can dump some of the pain, sorrow and frustration that you deal with. I find it interesting that "anonymous" is a coward...never a name to go with the hateful comments. Whatever their agenda, it is not loving or kind. The text sounds male ...to "anonymous"...man up and put your name on those snide little remarks or (better yet) just shut the hell up.

Unknown said...

Lesley ~

I want to address the one comment about structure. More for clarification, than anything. I understand, in theory, that is what many would think. Set the day as though there are jobs, have a schedule. However, in dealing with TBI, and to the extent with which Kevin has been injured, our real world solutions often do not work. When the brain is injured, and memory loss occurs, that means that everything that once was habit or cycle of life, has been erased. Sleep is erratic because the medication often changes personality and therefore changes the routine. Just when one thinks they have a routine down pat, the slightest occurrence can trigger a change of attitude in the TBI patient. It is like a game of Matching Pictures, but in this case as much as you concentrate on the matching set, you turn it over and it has changed. Although structure is definitely suggested, in textbook references, it is also advised that the caretaker must be prepared for these changes, and adjust accordingly. Which is what Lesley and Breezy have done. Remarkably well. Especially since neither are registered surgeons trained in the recover of a TBI patient. It is a daily learning experience, and one , which quite frankly, can scare the crap out of even the most qualified.

What you, Lesley, post, is the ongoing thoughts of the struggle to make normal that which will never be normal. I appreciate the fact that you do not edit. It is the only way, those of us who read with love and compassion, can realize the enormity of the daily routine.

Add this every day adapting, to the fact that it is a mother caring for a son, who was injured in a war, defending our freedoms to post "anonymous", and the burden is overwhelming.

Lesley, one final note. There will always be those who will try and hurt through snide remarks, because that is the way of the world. And it will hurt for an instant. A nick on the heart. We bleed. We take in a sharp breath from the stab. And then we remember, "What goes around comes around". And we quickly remove any thought of that person from our realm of being, because, we do not want to be anywhere near them, when all the hate and hurt they have wrought comes to sit beside them.

Sending love, prayers and hugs. Always.

Jessica said...

Hi Leslie! I had to chuckle over your comment about the dog. I love dogs, but I'm definitely a cat person and have three of my own. I have to agree with someone's comment regarding cat personalities: calicoes and torties are not always the friendliest and tend to be very temperamental (I have one, so I know this very well!) I think males are more easygoing; my black and white "tuxedo" cat is a sweetie. Orange tabbies and Maine Coons are also known for their friendliness. Obviously, a cat that is not afraid of wheelchairs or walkers is a must for Kevin. I'm sure the people at the shelter would be thrilled to work with you in choosing the right kitty. I wish I could adopt them all.

Sorry to hear Kevin is still having trouble with nausea. I hope it was just car sickness and doesn't continue.

You're all in my thoughts and prayers. Take care and ignore all the negative crap!