tag:blogger.com,1999:blog-6815867650533403423.post2535011072728369467..comments2023-11-02T11:00:31.919-05:00Comments on Mended Wings: Day 472 - Sep 13, 2009Lesliehttp://www.blogger.com/profile/04099407836145699943noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6815867650533403423.post-21039390181056945312009-09-14T22:27:00.558-05:002009-09-14T22:27:00.558-05:00Leslie...people just don't understand TBI. Ha...Leslie...people just don't understand TBI. Having a brain injured son myself I know the hell you are living through! It is a never ending pain. Micah is 9 years post severe TBI. Everything you mentioned is EXACTLY what goes on with my son. They CAN'T hold a job...they can't concentrate for any period of time. I feel your pain Leslie...and unless you have lived it, I really don't think you can have any concept of what TBI is like.<br /><br />God Bless you all<br />Brenda<br />Clarion, PAAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6815867650533403423.post-40771084051570413992009-09-14T18:31:07.525-05:002009-09-14T18:31:07.525-05:00I have no suggestions, Leslie. I cannot image one ...I have no suggestions, Leslie. I cannot image one of your days. My thoughts and prayers that it gets "better" somehow and that Kevin continues his progression. Brains and TBI are such delicate situations. As an x-ray tech, I have seen CTs of peoples' brains that you would think they could not function and yet they were walking around just like you and me. When my father had his stroke, I couldn't even see it on his Ct yet he was totally devasted - unable to talk, walk, function and lived 11 miserable months in a hospital bed while I prayed for God to take him (he was 90 years old and had 89 GREAT years). My point is you never really know. My husband had a TBI 1986, total left side paralysed. Seventeen days later he regained most of his function. They said hewould never work again. He's been working ever since to include heavy labor. <br />In medicine, we don't know why...in real life, we know whose hands we are actually in . . .not a MDs but the good man upstairs. <br />May you have strength to get through this and may you have the ability to treasure your days with Kevin, no matter how trying, no matter how many times you are up and down. You will get that strength and Kevin will continue the baby steps to being "better".<br /><br />I just wish I could reach through the screen and say, "I'll help you" but Ford City is many miles away. <br /><br />God bless you! I'm thinking and praying for your family,<br />HallieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6815867650533403423.post-33329957036790863602009-09-14T11:31:04.106-05:002009-09-14T11:31:04.106-05:00Well, I don't have a brain injury but I do tak...Well, I don't have a brain injury but I do take meds. They wreck sleep. Any change in meds or even taking it 20 minutes late will change sleep totally. Most of my posts are done in the middle of the night, so I sort of understand this part. <br /><br />I think my suggestion for a "job" had nothing to do with sleep. When I think back to the day you first gave Kevin his wallet when he was still very sick, his reaction was to offer the money to you. <br /><br />Then recently when you had a child visit, Kevin wanted to give his out grown clothing to this child.<br /><br />Somewhere in what he remembers and what he doesn't seems to be the things we learn as we grow up..paying, sharing, giving. Just be useful to someone else. I just think that Kevin might react to knowing he is doing something for someone. I think it might make him feel good to know he is "working" or sharing or whatever it is that he feels from the past that made him want to give. <br /><br />It certainly won't help with sleep but it might help to connect those feelings he gets. It might wake up the ones he has forgotten.<br /><br />I think when he gets the bike that might help with sleep or at least wear down his engery enough to rest and let you rest more.Holeehttps://www.blogger.com/profile/13724824435789407791noreply@blogger.comtag:blogger.com,1999:blog-6815867650533403423.post-4427901931736653402009-09-14T10:26:33.389-05:002009-09-14T10:26:33.389-05:00I wanted to comment exactly as Gretchen about your...I wanted to comment exactly as Gretchen about your situation being like having a newborn. The difference now is that there is no light at the end of the tunnel, at least that you can see anyway. God Bless you Leslie!Tracey from Pittsburghnoreply@blogger.comtag:blogger.com,1999:blog-6815867650533403423.post-12131198877051617172009-09-14T03:42:55.838-05:002009-09-14T03:42:55.838-05:00Leslie, you honestly are my hero. It's like be...Leslie, you honestly are my hero. It's like being in that newborn baby stage but with no end in sight. I feel for you! *HUGS* Maybe this would be too much stimulation for Kevin, but thought I'd mention it cuz it helps with the baby - I use a fan for white noise. It's not like we need it at night when everyone is sleeping, but it seems like it has a calming effect on him. Maybe it would for Kevin too?Gretchenhttps://www.blogger.com/profile/12103962585900696760noreply@blogger.com